The role of the psychologist in dealing with people with a rare diagnosis. A theoretical review from health psychology

Abstract

Genetic counseling is a complex process when working with rare diseases. It requires the accompaniment of different health professionals trained in the subject. Most published articles agree that psychologists should work from a psychoeducational model that offers information and support, being able to clearly transfer the knowledge that genetics and genomics offer to promote the health and well-being of those people diagnosed with a rare disease and their families. The aim of this review is to clarify on the approach that psychologists take regarding the complexity of having a rare diagnosis.

Keywords

• enfermedades poco frecuentes, asesoramiento genético, psicología de la salud