BMC Palliative Care (Jan 2022)
National strategy for palliative care of severely ill and dying people and their relatives in pandemics (PallPan) in Germany - study protocol of a mixed-methods project
- C. Bausewein,
- F. Hodiamont,
- N. Berges,
- A. Ullrich,
- C. Gerlach,
- K. Oechsle,
- B. Pauli,
- J. Weber,
- S. Stiel,
- N. Schneider,
- N. Krumm,
- R. Rolke,
- C. Gebel,
- M. Jansky,
- F. Nauck,
- U. Wedding,
- B. van Oorschot,
- C. Roch,
- L. Werner,
- M. Fischer,
- M. Schallenburger,
- M. C. Reuters,
- J. Schwartz,
- M. Neukirchen,
- A. Gülay,
- K. Maus,
- B. Jaspers,
- L. Radbruch,
- M. Heckel,
- I. Klinger,
- C. Ostgathe,
- U. Kriesen,
- C. Junghanß,
- E. Lehmann,
- D. Gesell,
- S. Gauder,
- C. Boehlke,
- G. Becker,
- A. Pralong,
- J. Strupp,
- C. Leisse,
- K. Schloesser,
- R. Voltz,
- N. Jung,
- S. T. Simon,
- for the PallPan Study Group
Affiliations
- C. Bausewein
- Department of Palliative Medicine, Ludwig-Maximilians-University Munich, Munich University Hospital
- F. Hodiamont
- Department of Palliative Medicine, Ludwig-Maximilians-University Munich, Munich University Hospital
- N. Berges
- Department of Palliative Medicine, Ludwig-Maximilians-University Munich, Munich University Hospital
- A. Ullrich
- Palliative Care Unit, Department of Oncology, Hematology and Bone Marrow Transplant, University Medical Center Hamburg-Eppendorf
- C. Gerlach
- Palliative Care Unit, Department of Oncology, Hematology and Bone Marrow Transplant, University Medical Center Hamburg-Eppendorf
- K. Oechsle
- Palliative Care Unit, Department of Oncology, Hematology and Bone Marrow Transplant, University Medical Center Hamburg-Eppendorf
- B. Pauli
- Department of Palliative Medicine, University of Cologne, Faculty of Medicine and University Hospital
- J. Weber
- Hannover Medical School, Institute for General Practice and Palliative Medicine, Palliative Care Reserch Grouph Group
- S. Stiel
- Hannover Medical School, Institute for General Practice and Palliative Medicine, Palliative Care Reserch Grouph Group
- N. Schneider
- Hannover Medical School, Institute for General Practice and Palliative Medicine, Palliative Care Reserch Grouph Group
- N. Krumm
- Department of Palliative Medicine, University Hospital Aachen
- R. Rolke
- Department of Palliative Medicine, University Hospital Aachen
- C. Gebel
- Department of Palliative Medicine, Jena University Hospital
- M. Jansky
- Department for Palliative Medicine, Georg August University Goettingen, University Medical Center
- F. Nauck
- Department for Palliative Medicine, Georg August University Goettingen, University Medical Center
- U. Wedding
- Department of Palliative Medicine, Jena University Hospital
- B. van Oorschot
- Interdisciplinary Centre for Palliative Medicine, University Wuerzburg, University Hospital
- C. Roch
- Interdisciplinary Centre for Palliative Medicine, University Wuerzburg, University Hospital
- L. Werner
- Interdisciplinary Centre for Palliative Medicine, University Wuerzburg, University Hospital
- M. Fischer
- Interdisciplinary Centre for Palliative Medicine, University Wuerzburg, University Hospital
- M. Schallenburger
- Interdisciplinary Centre for Palliative Care, Heinrich Heine University Duesseldorf, University Hospital
- M. C. Reuters
- Interdisciplinary Centre for Palliative Care, Heinrich Heine University Duesseldorf, University Hospital
- J. Schwartz
- Interdisciplinary Centre for Palliative Care, Heinrich Heine University Duesseldorf, University Hospital
- M. Neukirchen
- Interdisciplinary Centre for Palliative Care, Heinrich Heine University Duesseldorf, University Hospital
- A. Gülay
- Department of Palliative Medicine, University Hospital Bonn
- K. Maus
- Department of Palliative Medicine, University Hospital Bonn
- B. Jaspers
- Department of Palliative Medicine, University Hospital Bonn
- L. Radbruch
- Department of Palliative Medicine, University Hospital Bonn
- M. Heckel
- Department of Palliative Medicine, Comprehensive Cancer Center, CCC Erlangen – EMN, Friedrich-Alexander-Universität Erlangen-Nürnberg (FAU), University Hospital Erlangen
- I. Klinger
- Department of Palliative Medicine, Comprehensive Cancer Center, CCC Erlangen – EMN, Friedrich-Alexander-Universität Erlangen-Nürnberg (FAU), University Hospital Erlangen
- C. Ostgathe
- Department of Palliative Medicine, Comprehensive Cancer Center, CCC Erlangen – EMN, Friedrich-Alexander-Universität Erlangen-Nürnberg (FAU), University Hospital Erlangen
- U. Kriesen
- Department of Medicine, Clinic III-Hematology, Oncology, Palliative Medicine - CCC Mecklenburg-Vorpommern, Rostock University Medical Center
- C. Junghanß
- Department of Medicine, Clinic III-Hematology, Oncology, Palliative Medicine - CCC Mecklenburg-Vorpommern, Rostock University Medical Center
- E. Lehmann
- Department of Palliative Medicine, Ludwig-Maximilians-University Munich, Munich University Hospital
- D. Gesell
- Department of Palliative Medicine, Ludwig-Maximilians-University Munich, Munich University Hospital
- S. Gauder
- Department of Palliative Medicine, Ludwig-Maximilians-University Munich, Munich University Hospital
- C. Boehlke
- Faculty of Medicine, Medical Center, Department of Palliative Medicine, University of Freiburg
- G. Becker
- Faculty of Medicine, Medical Center, Department of Palliative Medicine, University of Freiburg
- A. Pralong
- Department of Palliative Medicine, University of Cologne, Faculty of Medicine and University Hospital
- J. Strupp
- Department of Palliative Medicine, University of Cologne, Faculty of Medicine and University Hospital
- C. Leisse
- Faculty of Medicine and University Hospital, Department I of Internal Medicine, University of Cologne
- K. Schloesser
- Department of Palliative Medicine, University of Cologne, Faculty of Medicine and University Hospital
- R. Voltz
- Department of Palliative Medicine, University of Cologne, Faculty of Medicine and University Hospital
- N. Jung
- Faculty of Medicine and University Hospital, Department I of Internal Medicine, University of Cologne
- S. T. Simon
- Department of Palliative Medicine, University of Cologne, Faculty of Medicine and University Hospital
- for the PallPan Study Group
- DOI
- https://doi.org/10.1186/s12904-021-00898-w
- Journal volume & issue
-
Vol. 21,
no. 1
pp. 1 – 9
Abstract
Abstract Background In the SARS-CoV-2 pandemic, general and specialist Palliative Care (PC) plays an essential role in health care, contributing to symptom control, psycho-social support, and providing support in complex decision making. Numbers of COVID-19 related deaths have recently increased demanding more palliative care input. Also, the pandemic impacts on palliative care for non-COVID-19 patients. Strategies on the care for seriously ill and dying people in pandemic times are lacking. Therefore, the program ‘Palliative care in Pandemics’ (PallPan) aims to develop and consent a national pandemic plan for the care of seriously ill and dying adults and their informal carers in pandemics including (a) guidance for generalist and specialist palliative care of patients with and without SARS-CoV-2 infections on the micro, meso and macro level, (b) collection and development of information material for an online platform, and (c) identification of variables and research questions on palliative care in pandemics for the national pandemic cohort network (NAPKON). Methods Mixed-methods project including ten work packages conducting (online) surveys and qualitative interviews to explore and describe i) experiences and burden of patients (with/without SARS-CoV-2 infection) and their relatives, ii) experiences, challenges and potential solutions of health care professionals, stakeholders and decision makers during the SARS-CoV-2 pandemic. The work package results inform the development of a consensus-based guidance. In addition, best practice examples and relevant literature will be collected and variables for data collection identified. Discussion For a future “pandemic preparedness” national and international recommendations and concepts for the care of severely ill and dying people are necessary considering both generalist and specialist palliative care in the home care and inpatient setting.
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