Patient engagement partnerships in clinical trials (PEP-CT): protocol for the systematic development and testing of patient partner and investigator decision aids

• Monica Parry,
• Dawn P Richards,
• Andrew Day,
• David Wells,
• Ann Kristin Bjørnnes,
• Ian Gilron,
• Karine Toupin-April,
• Debbie Feldman,
• Heather Burnside,
• Tina Ceroni,
• Hafsa Ansari,
• Sabrina Cavallo,
• Anne Ellis,
• Adhiyat Najam,
• Zoya Zulfiqar,
• Susan Marlin

Affiliations

Monica Parry

Lawrence S. Bloomberg Faculty of Nursing, University of Toronto, Toronto, Ontario, Canada

Dawn P Richards

Clinical Trials Ontario, Toronto, Ontario, Canada

Andrew Day

Department of Community Health and Epidemiology and CERU, Queen’s Unversity, Kingston, Ontario, Canada

David Wells

Diabetes Action Canada, Toronto, Ontario, Canada

Ann Kristin Bjørnnes

Department of Nursing and Health Promotion, Oslo Metropolitan University, Oslo, Norway

Ian Gilron

Departments of Anesthesiology and Perioperative Medicine, Biomedical and Molecular Sciences and School of Policy Studies, Queen’s University, Kingston, Ontario, Canada

Karine Toupin-April

School of Rehabilitation Sciences, University of Ottawa, Ottawa, Ontario, Canada

Debbie Feldman

School of Rehabilitation, Faculty of Medicine, Université de Montréal, Montreal, Quebec, Canada

Heather Burnside

Lawrence S. Bloomberg Faculty of Nursing, University of Toronto, Toronto, Ontario, Canada

Tina Ceroni

Clinical Trials Ontario, Toronto, Ontario, Canada

Hafsa Ansari

Lawrence S. Bloomberg Faculty of Nursing, University of Toronto, Toronto, Ontario, Canada

Sabrina Cavallo

School of Rehabilitation, Faculty of Medicine, Université de Montréal, Montreal, Quebec, Canada

Anne Ellis

Department of Medicine, Queen’s University, Kingston, Ontario, Canada

Adhiyat Najam

Diabetes Action Canada, Toronto, Ontario, Canada

Zoya Zulfiqar

Lawrence S. Bloomberg Faculty of Nursing, University of Toronto, Toronto, Ontario, Canada

Susan Marlin

Clinical Trials Ontario, Toronto, Ontario, Canada