Treating for stability: an ethnographic study of aspirations and limitations in haemophilia treatment in Europe

Abstract

Recent improvements in approaches to treatment have opened a window of opportunity to redefine and expand the goals of treatment in haemophilia This article explores treatment culture in light of these improvements and its potential impact on the range of possibilitis in the lived experience of haemophilia.

Keywords

• treatment goals
• haemophilia
• metrics of success
• flexible treatment
• annual bleed rate
• ethnography