Düzce Tıp Fakültesi Dergisi (Dec 2024)

The Self-Concept, Family Functioning, Psychological and Emotional Symptoms, in Children and Adolescents with Neurofibromatosis Type 1

  • Fevziye Toros,
  • İsmail Dorukhan Erk,
  • Pelin Dağ,
  • İrem Kargın,
  • Ali Evren Tufan,
  • Ozan Kayar,
  • Gülen Güler Aksu,
  • Meryem Özlem Kütük,
  • Özlem Tezol

DOI
https://doi.org/10.18678/dtfd.1509447
Journal volume & issue
Vol. 26, no. 3
pp. 221 – 227

Abstract

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Aim: This study aimed to examine the self-concept and related psychological factors in children and adolescents with neurofibromatosis type 1 (NF1).Material and Methods: A total of 71 participants (35 patients and 36 controls) were included in this study. As measurement tools the Piers-Harris children’s self-concept scale (PHSCS), family assessment device (FAD), Turgay DSM-IV-based screening and rating scale for disruptive behavior disorders (T-DSM-IV-S), children's depression inventory (CDI), Beck depression inventory (BDI), state-trait anxiety inventory (STAI), children’s sleep habits questionnaire (CSHQ), and autism spectrum quotient-adolescent (AQ-adolescent) were used.Results: NF1 patients had lower intellectual functioning/academic achievement (p=0.002) and popularity/social appreciation (p

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