Itinerário terapêutico de famílias de crianças com necessidades especiais de saúde*

Abstract

Objective to describe the therapeutic itinerary of families of children with special health needs.Methods this is a qualitative study carried out at the household of 14 families enrolled in primary health care.Results Participant families reported negative feelings with the discovery of the diagnosis, which intensified with the absence of professional guidance. They faced difficulties of access by the Unified Health System, having to seek the private service to care for their children and fragility regarding their own rights.Conclusion in the therapeutic itinerary of the families of children with special health needs, they suffer constant pilgrimages through health care networks seeking assistance and resolution.