Rossijskij Vestnik Perinatologii i Pediatrii (May 2021)

Emotional and personal characteristics of adolescents with Ehlers–Danlos syndrome

  • L. A. Troitskaya,
  • K. L. Surkova,
  • А. N. Semyachkina,
  • E. А. Nikolaeva

DOI
https://doi.org/10.21508/1027-4065-2021-66-2-101-104
Journal volume & issue
Vol. 66, no. 2
pp. 101 – 104

Abstract

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Hereditary connective tissue diseases are among the most common genetic syndromes. In most cases the studies of children with Ehlers–Danlos syndrome are devoted to the clinical manifestations of the disease. Insufficient information on the features of emotional, personal, and behavioral spheres in this category of children creates the need to perform targeted psychological research.Objective. To study the features of the emotional and personal sphere in adolescents with Ehlers–Danlos syndrome of 12–16 years old.Material and methods. The study involved 24 boys and 22 girls from 12 to 18 years old with a clinical diagnosis of Ehlers–Danlos syndrome. The study used multidirectional diagnostic methods of emotional, personal and behavioral spheres.Results. The emotional features of adolescents with Ehlers–Danlos syndrome are manifested in the form of depressive, anxiety states, which are associated with frustrated needs for self-affirmation. The study revealed the heterogeneity and originality of the picture of emotional and personal characteristics of patients with Ehlers–Danlos syndrome. The degree of awareness of the individual characteristics of a teenager affects the personal development of the child as a whole.

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