‘'Even a Self-Advocate Needs to Buy Milk'’ – Economic Barriers to Self-Advocacy in the Autism and Intellectual Disability Movement

Abstract

Autistic people and people with an intellectual disability have been actively involved in disability advocacy; however, it is still often parents and professionals who lead organisations speaking on their behalf. Previous studies have found that autistic self-advocates and self-advocates with an intellectual disability have been systematically marginalised in the disability movement. This article appraises how economic factors influence self-advocates’ position within the disability movement, based on qualitative analysis of data collected in two countries, the UK and Hungary. The study found that lack of resources, poverty and unpaid positions at organisations strongly hinder self-advocates’ participation in advocacy/disability rights organisations speaking for them. Findings also suggest that practices of disability organisations may contribute to maintaining these barriers.

Keywords

• disability advocacy
• autism
• intellectual disability
• disability movement
• income
• poverty
• hierarchy