Healthcare professionals’ perspectives of the provision of, and challenges for, eating, drinking and psychological support post stroke: findings from semistructured interviews across India
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Sandy Middleton,
Mark Gabbay,
Gordon Prescott,
Marion Walker,
Anil Sharma,
Anand Dixit,
Jo Gibson,
Maree Hackett,
Sudhir Sharma,
Caroline Sanders,
Stephanie P Jones,
Andy Clegg,
Jeyaraj D Pandian,
Dominique Cadilhac,
Girish Baburao Kulkarni,
Dame Caroline Watkins,
Ranjit J Injety,
Sanjali Ratra,
PN Sylaja,
Veena Babu,
MV Padma Srivastava,
Sakshi Sharma,
Jemin Webster,
Amrit Koirala,
Pawna Kaushal,
Arvind Sharma,
Jagruti Prajapati,
Jo Catherine Weldon,
Jennifer A Kuroski,
Caroline Leigh Watkins,
Catherine Elizabeth Lightbody,
MV Padma Srivastava,
Liz Boaden,
Denise Forshaw,
Rachel Georgiou,
Steph Jones,
Liz Lightbody
Affiliations
Sandy Middleton
5 Nursing Research Institute, St Vincent`s Health Network Sydney and Australian Catholic University, St Vincent`s Hospital Melbourne Pty Ltd, Fitzroy, Victoria, Australia
Mark Gabbay
Gordon Prescott
Marion Walker
Anil Sharma
Department of Neurosurgery, AIIMS Raipur, Raipur, Chhattisgarh, India
Anand Dixit
3 Newcastle upon Tyne Hospitals NHS Foundation Trust, Newcastle upon Tyne, UK
Jo Gibson
Maree Hackett
Sudhir Sharma
Department of Neurology, Indira Gandhi Medical College, Shimla, Himachal Pradesh, India
Caroline Sanders
research assistant
Stephanie P Jones
School of Nursing and Midwifery, University of Central Lancashire, Preston, UK
Andy Clegg
Jeyaraj D Pandian
Department of Neurology, Christian Medical College and Hospital Ludhiana, Ludhiana, Punjab, India
Dominique Cadilhac
Girish Baburao Kulkarni
Department of Neurology, National Institute of Mental Health and Neuro Sciences, Bangalore, Karnataka, India
Dame Caroline Watkins
Ranjit J Injety
Department of Neurology, Christian Medical College and Hospital Ludhiana, Ludhiana, Punjab, India
Sanjali Ratra
Department of Neurology, Christian Medical College and Hospital Ludhiana, Ludhiana, Punjab, India
PN Sylaja
Department of Neurology, Sree Chitra Tirunal Institute of Medical Sciences & Technology, Thiruvananthapuram, India
Veena Babu
Department of Neurology, Sree Chitra Tirunal Institute for Medical Sciences and Technology, Thiruvananthapuram, Kerala, India
MV Padma Srivastava
Department of Neurology, All India Institute of Medical Sciences, New Delhi, India
Sakshi Sharma
Department of Neurology, All India Institute of Medical Sciences, New Delhi, India
Jemin Webster
Department of Medicine, Baptist Christian Hospital Tezpur, Tezpur, Assam, India
Amrit Koirala
Department of Medicine, Baptist Christian Hospital Tezpur, Tezpur, Assam, India
Pawna Kaushal
Department of Neurology, Indira Gandhi Medical College, Shimla, Himachal Pradesh, India
Arvind Sharma
Department of Neurology, Zydus Research Center, Ahmedabad, Gujarat, India
Jagruti Prajapati
Department of Neurology, Zydus Research Center, Ahmedabad, Gujarat, India
Jo Catherine Weldon
School of Nursing and Midwifery, University of Central Lancashire, Preston, UK
Jennifer A Kuroski
University of Central Lancashire, Preston, UK
Caroline Leigh Watkins
School of Nursing and Midwifery, University of Central Lancashire, Preston, UK
Catherine Elizabeth Lightbody
School of Nursing and Midwifery, University of Central Lancashire, Preston, UK
MV Padma Srivastava
Department of Neurology, All India Institute of Medical Sciences, New Delhi, India
Aim This qualitative study explores with health professionals the provision of, and challenges for, postdischarge stroke care, focussing on eating, drinking and psychological support across India.Design Qualitative semistructured interviews.Setting Seven geographically diverse hospitals taking part in a Global Health Research Programme on Improving Stroke Care in India.Participants A purposive sample of healthcare professionals with current experience of working with patients who had a stroke.Results Interviews with 66 healthcare professionals (23 nurses (14 staff nurses; 7 senior nurse officers; 1 intensive care unit nurse; 1 palliative care nurse)); 16 doctors (10 neurologists; 6 physicians); 10 physiotherapists; 5 speech and language therapists; 4 occupational therapists; 4 dieticians; 2 psychiatrists; and 2 social workers resulted in three main themes: integrated inpatient discharge care planning processes; postdischarge patient and caregiver role and challenges; patient and caregiver engagement post discharge.Conclusions Discharge planning was integrated and customised, although resources were limited in some sites. Task shifting compensated for a lack of specialists but was limited by staff education and training. Caregivers faced challenges in accessing and providing postdischarge care. Postdischarge care was mainly hospital based, supported by teleservices, especially for rural populations. Further research is needed to understand postdischarge care provision and the needs of stroke survivors and their caregivers.