Frontiers in Rehabilitation Sciences (Oct 2022)
Pandemic intake questionnaire to improve quality, effectiveness, and efficiency of outpatient neurologic and developmental care at the Kennedy Krieger institute during the COVID-19 pandemic
- Pooja Vedmurthy,
- Pooja Vedmurthy,
- Connor Murray,
- Connor Murray,
- Belinda Chen,
- Akua Asiedu,
- Kristin Baranano,
- Mihee Bay,
- Mihee Bay,
- Mihee Bay,
- Harolyn Belcher,
- Harolyn Belcher,
- Harolyn Belcher,
- Harolyn Belcher,
- Harolyn Belcher,
- Vera Burton,
- Charles Conlon,
- Amena Fine,
- Amena Fine,
- Ryan Gill,
- Ryan Gill,
- Ryan Gill,
- Jacqueline Harris,
- Jacqueline Harris,
- Jacqueline Harris,
- Jacqueline Harris,
- Khaylynn Hart,
- Khaylynn Hart,
- Khaylynn Hart,
- Shannon Inches,
- Shannon Inches,
- Jennifer Johnson,
- Jennifer Johnson,
- Eboni Lance,
- Eboni Lance,
- Eboni Lance,
- Paul H. Lipkin,
- Paul H. Lipkin,
- Paul H. Lipkin,
- Deepa U. Menon,
- Deepa U. Menon,
- Deepa U. Menon,
- Deepa U. Menon,
- Tiffany McIntyre,
- Tiffany McIntyre,
- Meghna Rajaprakash,
- Meghna Rajaprakash,
- Albert Recio,
- Albert Recio,
- Harvey S. Singer,
- Harvey S. Singer,
- Harvey S. Singer,
- Lindsay Smegal,
- Lindsay Smegal,
- Constance L. Smith-Hicks,
- Constance L. Smith-Hicks,
- Hilary Vernon,
- Hilary Vernon,
- Anna Maria Wilms Floet,
- Anna Maria Wilms Floet,
- Joyce Wong,
- Joyce Wong,
- Joyce Wong,
- Karina Yelin,
- Karina Yelin,
- Mary L. O’Connor Leppert,
- Mary L. O’Connor Leppert,
- Mary L. O’Connor Leppert,
- Mary L. O’Connor Leppert,
- T. Andrew Zabel,
- T. Andrew Zabel,
- Anne M. Comi,
- Anne M. Comi,
- Anne M. Comi,
- Anne M. Comi
Affiliations
- Pooja Vedmurthy
- Department of Neurology, Kennedy Krieger Institute, Baltimore, MD, United States
- Pooja Vedmurthy
- Department of Neurology and Developmental Medicine, Kennedy Krieger Institute, Baltimore, MD, United States
- Connor Murray
- Department of Neurology, Kennedy Krieger Institute, Baltimore, MD, United States
- Connor Murray
- Department of Neurology and Developmental Medicine, Kennedy Krieger Institute, Baltimore, MD, United States
- Belinda Chen
- Center for Development and Learning, Kennedy Krieger Institute, Baltimore, MD, United States
- Akua Asiedu
- Center for Development and Learning, Kennedy Krieger Institute, Baltimore, MD, United States
- Kristin Baranano
- Department of Neurology, Johns Hopkins University School of Medicine, Baltimore, MD, United States
- Mihee Bay
- Department of Neurology and Developmental Medicine, Kennedy Krieger Institute, Baltimore, MD, United States
- Mihee Bay
- Center for Development and Learning, Kennedy Krieger Institute, Baltimore, MD, United States
- Mihee Bay
- Department of Pediatrics, Johns Hopkins University School of Medicine, Baltimore, MD, United States
- Harolyn Belcher
- Department of Neurology and Developmental Medicine, Kennedy Krieger Institute, Baltimore, MD, United States
- Harolyn Belcher
- Department of Neurology, Johns Hopkins University School of Medicine, Baltimore, MD, United States
- Harolyn Belcher
- Department of Pediatrics, Johns Hopkins University School of Medicine, Baltimore, MD, United States
- Harolyn Belcher
- Center for Diversity in Public Health Leadership Training, Kennedy Krieger Institute, Baltimore, MD, United States
- Harolyn Belcher
- Office for Health Equity, Inclusion and Diversity, Kennedy Krieger Institute, Baltimore, MD, United States
- Vera Burton
- Department of Neurology, Johns Hopkins University School of Medicine, Baltimore, MD, United States
- Charles Conlon
- Department of Pediatrics, Johns Hopkins University School of Medicine, Baltimore, MD, United States
- Amena Fine
- Department of Neurology, Kennedy Krieger Institute, Baltimore, MD, United States
- Amena Fine
- Department of Neurology, Johns Hopkins University School of Medicine, Baltimore, MD, United States
- Ryan Gill
- Department of Neurology, Kennedy Krieger Institute, Baltimore, MD, United States
- Ryan Gill
- Center for Development and Learning, Kennedy Krieger Institute, Baltimore, MD, United States
- Ryan Gill
- Department of Neurology, Johns Hopkins University School of Medicine, Baltimore, MD, United States
- Jacqueline Harris
- Department of Neurology and Developmental Medicine, Kennedy Krieger Institute, Baltimore, MD, United States
- Jacqueline Harris
- Department of Neurology, Johns Hopkins University School of Medicine, Baltimore, MD, United States
- Jacqueline Harris
- Department of Pediatrics, Johns Hopkins University School of Medicine, Baltimore, MD, United States
- Jacqueline Harris
- Department of Neuropsychology, Kennedy Krieger Institute, Baltimore, MD, United States
- Khaylynn Hart
- Department of Neurology, Kennedy Krieger Institute, Baltimore, MD, United States
- Khaylynn Hart
- Department of Neurology and Developmental Medicine, Kennedy Krieger Institute, Baltimore, MD, United States
- Khaylynn Hart
- Center for Autism and Related Disorders, Kennedy Krieger Institute, Baltimore, MD, United States
- Shannon Inches
- Department of Neurology and Developmental Medicine, Kennedy Krieger Institute, Baltimore, MD, United States
- Shannon Inches
- 0International Center for Spinal Cord Injury, Kennedy Krieger Institute, Baltimore, MD, United States
- Jennifer Johnson
- Department of Neurology, Kennedy Krieger Institute, Baltimore, MD, United States
- Jennifer Johnson
- Department of Neurology and Developmental Medicine, Kennedy Krieger Institute, Baltimore, MD, United States
- Eboni Lance
- Department of Neurology, Kennedy Krieger Institute, Baltimore, MD, United States
- Eboni Lance
- Department of Neurology and Developmental Medicine, Kennedy Krieger Institute, Baltimore, MD, United States
- Eboni Lance
- Department of Neurology, Johns Hopkins University School of Medicine, Baltimore, MD, United States
- Paul H. Lipkin
- Department of Neurology and Developmental Medicine, Kennedy Krieger Institute, Baltimore, MD, United States
- Paul H. Lipkin
- Center for Development and Learning, Kennedy Krieger Institute, Baltimore, MD, United States
- Paul H. Lipkin
- Department of Pediatrics, Johns Hopkins University School of Medicine, Baltimore, MD, United States
- Deepa U. Menon
- Department of Neurology and Developmental Medicine, Kennedy Krieger Institute, Baltimore, MD, United States
- Deepa U. Menon
- Department of Neurology, Johns Hopkins University School of Medicine, Baltimore, MD, United States
- Deepa U. Menon
- Department of Pediatrics, Johns Hopkins University School of Medicine, Baltimore, MD, United States
- Deepa U. Menon
- Center for Autism and Related Disorders, Kennedy Krieger Institute, Baltimore, MD, United States
- Tiffany McIntyre
- Department of Neurology, Kennedy Krieger Institute, Baltimore, MD, United States
- Tiffany McIntyre
- Department of Neurology and Developmental Medicine, Kennedy Krieger Institute, Baltimore, MD, United States
- Meghna Rajaprakash
- Department of Neurology and Developmental Medicine, Kennedy Krieger Institute, Baltimore, MD, United States
- Meghna Rajaprakash
- Department of Neurology, Johns Hopkins University School of Medicine, Baltimore, MD, United States
- Albert Recio
- 1Department of Physical Medicine and Rehabilitation, Johns Hopkins University School of Medicine, Baltimore, MD, United States
- Albert Recio
- 2Department of Genetic Medicine, Johns Hopkins University School of Medicine, Baltimore, MD, United States
- Harvey S. Singer
- Department of Neurology and Developmental Medicine, Kennedy Krieger Institute, Baltimore, MD, United States
- Harvey S. Singer
- Department of Neurology, Johns Hopkins University School of Medicine, Baltimore, MD, United States
- Harvey S. Singer
- Department of Pediatrics, Johns Hopkins University School of Medicine, Baltimore, MD, United States
- Lindsay Smegal
- Department of Neurology, Kennedy Krieger Institute, Baltimore, MD, United States
- Lindsay Smegal
- Department of Neurology and Developmental Medicine, Kennedy Krieger Institute, Baltimore, MD, United States
- Constance L. Smith-Hicks
- Department of Neurology and Developmental Medicine, Kennedy Krieger Institute, Baltimore, MD, United States
- Constance L. Smith-Hicks
- Department of Neurology, Johns Hopkins University School of Medicine, Baltimore, MD, United States
- Hilary Vernon
- Department of Pediatrics, Johns Hopkins University School of Medicine, Baltimore, MD, United States
- Hilary Vernon
- 2Department of Genetic Medicine, Johns Hopkins University School of Medicine, Baltimore, MD, United States
- Anna Maria Wilms Floet
- Department of Neurology and Developmental Medicine, Kennedy Krieger Institute, Baltimore, MD, United States
- Anna Maria Wilms Floet
- Department of Pediatrics, Johns Hopkins University School of Medicine, Baltimore, MD, United States
- Joyce Wong
- Department of Neurology and Developmental Medicine, Kennedy Krieger Institute, Baltimore, MD, United States
- Joyce Wong
- Center for Development and Learning, Kennedy Krieger Institute, Baltimore, MD, United States
- Joyce Wong
- Department of Pediatrics, Johns Hopkins University School of Medicine, Baltimore, MD, United States
- Karina Yelin
- Center for Development and Learning, Kennedy Krieger Institute, Baltimore, MD, United States
- Karina Yelin
- Department of Pediatrics, Johns Hopkins University School of Medicine, Baltimore, MD, United States
- Mary L. O’Connor Leppert
- Department of Neurology, Kennedy Krieger Institute, Baltimore, MD, United States
- Mary L. O’Connor Leppert
- Department of Neurology and Developmental Medicine, Kennedy Krieger Institute, Baltimore, MD, United States
- Mary L. O’Connor Leppert
- Center for Development and Learning, Kennedy Krieger Institute, Baltimore, MD, United States
- Mary L. O’Connor Leppert
- Department of Pediatrics, Johns Hopkins University School of Medicine, Baltimore, MD, United States
- T. Andrew Zabel
- Department of Neuropsychology, Kennedy Krieger Institute, Baltimore, MD, United States
- T. Andrew Zabel
- 3Department of Psychiatry and Behavioral Sciences, Johns Hopkins University School of Medicine, Baltimore, MD, United States
- Anne M. Comi
- Department of Neurology, Kennedy Krieger Institute, Baltimore, MD, United States
- Anne M. Comi
- Department of Neurology and Developmental Medicine, Kennedy Krieger Institute, Baltimore, MD, United States
- Anne M. Comi
- Department of Neurology, Johns Hopkins University School of Medicine, Baltimore, MD, United States
- Anne M. Comi
- Department of Pediatrics, Johns Hopkins University School of Medicine, Baltimore, MD, United States
- DOI
- https://doi.org/10.3389/fresc.2022.934558
- Journal volume & issue
-
Vol. 3
Abstract
BackgroundThe COVID-19 pandemic uniquely affects patients with neurologic and developmental disabilities at the Kennedy Krieger Institute. These patients are at increased risk of co-morbidities, increasing their risk of contracting COVID-19. Disruptions in their home and school routines, and restrictions accessing crucial healthcare services has had a significant impact.MethodsA Pandemic Intake questionnaire regarding COVID-19 related medical concerns of guardians of patients was distributed using Qualtrics. Data from May-December 2020 were merged with demographic information of patients from 10 clinics (Center for Autism and Related Disorders (CARD), Neurology, Epigenetics, Neurogenetics, Center for Development and Learning (CDL) Sickle Cell, Spinal Cord, Sturge-Weber syndrome (SWS), Tourette's, and Metabolism). A provider feedback survey was distributed to program directors to assess the effectiveness of this intervention.ResultsAnalysis included responses from 1643 guardians of pediatric patients (mean age 9.5 years, range 0–21.6 years). Guardians of patients in more medically complicated clinics reported perceived increased risk of COVID-19 (p < 0.001) and inability to obtain therapies (p < 0.001) and surgeries (p < 0.001). Guardian responses from CARD had increased reports of worsening behavior (p = 0.01). Providers increased availability of in-person and virtual therapies and visits and made referrals for additional care to address this. In a survey of medical providers, five out of six program directors who received the responses to this survey found this questionnaire helpful in caring for their patients.ConclusionThis quality improvement project successfully implemented a pre-visit questionnaire to quickly assess areas of impact of COVID-19 on patients with neurodevelopmental disorders. During the pandemic, results identified several major areas of impact, including patient populations at increased risk for behavioral changes, sleep and/or disruptions of medical care. Most program directors reported improved patient care as a result.
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