Frontiers in Immunology (Jul 2022)
Targeted Gene Sanger Sequencing Should Remain the First-Tier Genetic Test for Children Suspected to Have the Five Common X-Linked Inborn Errors of Immunity
- Koon-Wing Chan,
- Chung-Yin Wong,
- Daniel Leung,
- Xingtian Yang,
- Susanna F. S. Fok,
- Priscilla H. S. Mak,
- Lei Yao,
- Wen Ma,
- Huawei Mao,
- Xiaodong Zhao,
- Weiling Liang,
- Surjit Singh,
- Mohamed-Ridha Barbouche,
- Jian-Xin He,
- Li-Ping Jiang,
- Woei-Kang Liew,
- Minh Huong Thi Le,
- Dina Muktiarti,
- Fatima Johanna Santos-Ocampo,
- Reda Djidjik,
- Brahim Belaid,
- Intan Hakimah Ismail,
- Amir Hamzah Abdul Latiff,
- Way Seah Lee,
- Tong-Xin Chen,
- Jinrong Liu,
- Runming Jin,
- Xiaochuan Wang,
- Yin Hsiu Chien,
- Hsin-Hui Yu,
- Dinesh Raj,
- Revathi Raj,
- Jenifer Vaughan,
- Michael Urban,
- Sylvia van den Berg,
- Brian Eley,
- Anselm Chi-Wai Lee,
- Mas Suhaila Isa,
- Elizabeth Y. Ang,
- Bee Wah Lee,
- Bee Wah Lee,
- Allen Eng Juh Yeoh,
- Allen Eng Juh Yeoh,
- Lynette P. Shek,
- Lynette P. Shek,
- Nguyen Ngoc Quynh Le,
- Van Anh Thi Nguyen,
- Anh Phan Nguyen Lien,
- Regina D. Capulong,
- Joanne Michelle Mallillin,
- Jose Carlo Miguel M. Villanueva,
- Karol Anne B. Camonayan,
- Michelle De Vera,
- Roxanne J. Casis-Hao,
- Rommel Crisenio M. Lobo,
- Ruby Foronda,
- Vicky Wee Eng Binas,
- Soraya Boushaki,
- Soraya Boushaki,
- Nadia Kechout,
- Gun Phongsamart,
- Siriporn Wongwaree,
- Chamnanrua Jiratchaya,
- Mongkol Lao-Araya,
- Muthita Trakultivakorn,
- Narissara Suratannon,
- Orathai Jirapongsananuruk,
- Teerapol Chantveerawong,
- Wasu Kamchaisatian,
- Lee Lee Chan,
- Mia Tuang Koh,
- Ke Juin Wong,
- Siew Moy Fong,
- Meow-Keong Thong,
- Zarina Abdul Latiff,
- Lokman Mohd Noh,
- Lokman Mohd Noh,
- Rajiva de Silva,
- Zineb Jouhadi,
- Khulood Al-Saad,
- Pandiarajan Vignesh,
- Ankur Kumar Jindal,
- Amit Rawat,
- Anju Gupta,
- Deepti Suri,
- Jing Yang,
- Elaine Yuen-Ling Au,
- Janette Siu-Yin Kwok,
- Siu-Yuen Chan,
- Wayland Yuk-Fun Hui,
- Gilbert T. Chua,
- Jaime Rosa Duque,
- Kai-Ning Cheong,
- Patrick Chun Yin Chong,
- Marco Hok Kung Ho,
- Tsz-Leung Lee,
- Wilfred Hing-Sang Wong,
- Wanling Yang,
- Pamela P. Lee,
- Wenwei Tu,
- Xi-Qiang Yang,
- Yu Lung Lau
Affiliations
- Koon-Wing Chan
- Department of Paediatrics and Adolescent Medicine, School of Clinical Medicine, Li Ka Shing Faculty of Medicine, The University of Hong Kong, Hong Kong, Hong Kong SAR, China
- Chung-Yin Wong
- Department of Paediatrics and Adolescent Medicine, School of Clinical Medicine, Li Ka Shing Faculty of Medicine, The University of Hong Kong, Hong Kong, Hong Kong SAR, China
- Daniel Leung
- Department of Paediatrics and Adolescent Medicine, School of Clinical Medicine, Li Ka Shing Faculty of Medicine, The University of Hong Kong, Hong Kong, Hong Kong SAR, China
- Xingtian Yang
- Department of Paediatrics and Adolescent Medicine, School of Clinical Medicine, Li Ka Shing Faculty of Medicine, The University of Hong Kong, Hong Kong, Hong Kong SAR, China
- Susanna F. S. Fok
- Department of Paediatrics and Adolescent Medicine, School of Clinical Medicine, Li Ka Shing Faculty of Medicine, The University of Hong Kong, Hong Kong, Hong Kong SAR, China
- Priscilla H. S. Mak
- Department of Paediatrics and Adolescent Medicine, School of Clinical Medicine, Li Ka Shing Faculty of Medicine, The University of Hong Kong, Hong Kong, Hong Kong SAR, China
- Lei Yao
- Department of Paediatrics and Adolescent Medicine, School of Clinical Medicine, Li Ka Shing Faculty of Medicine, The University of Hong Kong, Hong Kong, Hong Kong SAR, China
- Wen Ma
- Department of Paediatrics and Adolescent Medicine, School of Clinical Medicine, Li Ka Shing Faculty of Medicine, The University of Hong Kong, Hong Kong, Hong Kong SAR, China
- Huawei Mao
- Department of Immunology, Ministry of Education Key Laboratory of Major Diseases in Children, Beijing Children’s Hospital, Capital Medical University, National Center for Children’s Health, Beijing, China
- Xiaodong Zhao
- Children’s Hospital, Chongqing Medical University, Chongqing, China
- Weiling Liang
- Shenzhen Primary Immunodeficiency Diagnostic and Therapeutic Laboratory, The University of Hong Kong-Shenzhen Hospital, Shenzhen, China
- Surjit Singh
- Pediatric Allergy and Immunology Unit, Department of Pediatrics, Advanced Pediatrics Centre, Postgraduate Institute of Medical Education and Research, Chandigarh, India
- Mohamed-Ridha Barbouche
- Institut Pasteur de Tunis, Université Tunis El Manar, Tunis, Tunisia
- Jian-Xin He
- Department of Respiratory Medicine, Beijing Children’s Hospital, Capital Medical University, National Center for Children’s Health, Beijing, China
- Li-Ping Jiang
- Children’s Hospital, Chongqing Medical University, Chongqing, China
- Woei-Kang Liew
- Department of Paediatric Medicine, KK Women’s and Children’s Hospital, Singapore, Singapore
- Minh Huong Thi Le
- Department of Immuno-Allergology and Rheumatology, National Hospital of Paediatrics, Hanoi, Vietnam
- Dina Muktiarti
- 0Department of Child Health, Faculty of Medicine Universitas Indonesia-Cipto Mangunkusumo Hospital, Jakarta, Indonesia
- Fatima Johanna Santos-Ocampo
- 1Section of Allergy and Immunology, Department of Pediatrics, Makati Medical Center, Makati City, Philippines
- Reda Djidjik
- 2Department of Medical Immunology, Beni Messous University Hospital Centre, University of Algiers 1, Algiers, Algeria
- Brahim Belaid
- 2Department of Medical Immunology, Beni Messous University Hospital Centre, University of Algiers 1, Algiers, Algeria
- Intan Hakimah Ismail
- 3Clinical Immunology Unit, Department of Paediatrics, Faculty of Medicine and Health Sciences, Universiti Putra Malaysia, Selangor, Malaysia
- Amir Hamzah Abdul Latiff
- 4Allergy and Immunology Centre, Pantai Hospital Kuala Lumpur, Kuala Lumpur, Malaysia
- Way Seah Lee
- 5Department of Paediatrics, Faculty of Medicine, University Malaya, Kuala Lumpur, Malaysia
- Tong-Xin Chen
- 6Shanghai Children’s Medical Center, School of Medicine, Shanghai Jiao Tong University, Shanghai, China
- Jinrong Liu
- Department of Respiratory Medicine, Beijing Children’s Hospital, Capital Medical University, National Center for Children’s Health, Beijing, China
- Runming Jin
- 7Department of Pediatrics, Union Hospital, Tongji Medical College, Huazhong University of Science and Technology, Wuhan, China
- Xiaochuan Wang
- 8Department of Clinical Immunology, Children’s Hospital of Fudan University, Shanghai, China
- Yin Hsiu Chien
- 9Department of Medical Genetics and Pediatrics, National Taiwan University Hospital, Taipei, Taiwan
- Hsin-Hui Yu
- 0Division of Allergy, Immunology and Rheumatology, Department of Pediatrics, National Taiwan University Children’s Hospital, Taipei, Taiwan
- Dinesh Raj
- 1Department of Paediatrics, Holy Family Hospital, University of Delhi, New Delhi, India
- Revathi Raj
- 2Department of Paediatric Haematology, Oncology, Blood and Marrow Transplantation, Apollo Hospitals, Chennai, India
- Jenifer Vaughan
- 3Department of Molecular Medicine and Haematology, National Health Laboratory Services, University of the Witwatersrand, Johannesburg, South Africa
- Michael Urban
- 4Division of Molecular Biology and Human Genetics, University of Stellenbosch Western Cape, Pretoria, South Africa
- Sylvia van den Berg
- 5Department of Immunology, Ampath and Department of Paediatrics and Child Health, University of Pretoria and Steve Biko Academic Hospital, Pretoria, South Africa
- Brian Eley
- 6Department of Paediatrics and Child Health, University of Cape Town and Red Cross War Memorial Children’s Hospital, Cape Town, South Africa
- Anselm Chi-Wai Lee
- 7Children’s Haematology and Cancer Center, Mount Elizabeth Hospital, Singapore, Singapore
- Mas Suhaila Isa
- 8Khoo Teck Puat-National University Children’s Medical Institute, National University Health System, Singapore, Singapore
- Elizabeth Y. Ang
- 8Khoo Teck Puat-National University Children’s Medical Institute, National University Health System, Singapore, Singapore
- Bee Wah Lee
- 8Khoo Teck Puat-National University Children’s Medical Institute, National University Health System, Singapore, Singapore
- Bee Wah Lee
- 9Department of Paediatrics, Yong Loo Lin School of Medicine, National University of Singapore, Singapore, Singapore
- Allen Eng Juh Yeoh
- 8Khoo Teck Puat-National University Children’s Medical Institute, National University Health System, Singapore, Singapore
- Allen Eng Juh Yeoh
- 9Department of Paediatrics, Yong Loo Lin School of Medicine, National University of Singapore, Singapore, Singapore
- Lynette P. Shek
- 9Department of Paediatrics, Yong Loo Lin School of Medicine, National University of Singapore, Singapore, Singapore
- Lynette P. Shek
- 0Singapore Institute for Clinical Sciences, Agency for Science, Technology and Research (A*STAR), Singapore, Singapore
- Nguyen Ngoc Quynh Le
- 1National Hospital of Pediatrics, Hanoi, Vietnam
- Van Anh Thi Nguyen
- 2Department of Rheumatology, Allergy, and Immunology, Vietnam National Children's Hospital, Hanoi, Vietnam
- Anh Phan Nguyen Lien
- 3Children’s Hospital 1, Ho Chi Minh City, Vietnam
- Regina D. Capulong
- 4Department of Pediatrics, ManilaMed, Manila, Philippines
- Joanne Michelle Mallillin
- 5Child and Adult Allergy, Asthma and Immunology General Emilio Aguinaldo Memorial Hospital, Cavite, Philippines
- Jose Carlo Miguel M. Villanueva
- 6Section of Allergy and Clinical Immunology, Department of Pediatrics, University of Santo Tomas Hospital, Manila, Philippines
- Karol Anne B. Camonayan
- 7Philippine General Hospital, University of the Philippines, Manila, Philippines
- Michelle De Vera
- 8Section of Allergy and Immunology, The Medical City, Pasig, Philippines
- Roxanne J. Casis-Hao
- 9Division of Allergy and Clinical Immunology, Department of Pediatrics, Philippine General Hospital, Manila, Philippines
- Rommel Crisenio M. Lobo
- 0Section of Allergy Asthma and Immunology, Fe del Mundo Medical Center, Quezon City, Philippines
- Ruby Foronda
- 1Department of Pediatrics, University of the East Ramon Magsaysay Memorial Medical Center, Quezon City, Philippines
- Vicky Wee Eng Binas
- 2De La Salle Health Sciences Institute, Dasmarinas, Philippines
- Soraya Boushaki
- 2Department of Medical Immunology, Beni Messous University Hospital Centre, University of Algiers 1, Algiers, Algeria
- Soraya Boushaki
- 3Unit of Genetics, Laboratory of Molecular and Cellular Biology, Faculty of Biological Sciences, University of Sciences and Technology “HouariBoumediene”, Algiers, Algeria
- Nadia Kechout
- 4Department of Immunology, Pasteur Institute of Algeria/Faculty of Medicine, Algiers, Algeria
- Gun Phongsamart
- 5Department of Pediatrics, Queen Sirikit National Institute of Child Health, Bangkok, Thailand
- Siriporn Wongwaree
- 5Department of Pediatrics, Queen Sirikit National Institute of Child Health, Bangkok, Thailand
- Chamnanrua Jiratchaya
- 5Department of Pediatrics, Queen Sirikit National Institute of Child Health, Bangkok, Thailand
- Mongkol Lao-Araya
- 6Department of Pediatrics, Faculty of Medicine, Chiang Mai University, Chiang Mai, Thailand
- Muthita Trakultivakorn
- 6Department of Pediatrics, Faculty of Medicine, Chiang Mai University, Chiang Mai, Thailand
- Narissara Suratannon
- 7Center of Excellence for Allergy and Clinical Immunology, Division of Allergy, Immunology and Rheumatology, Department of Pediatrics, King Chulalongkorn Memorial Hospital, the Thai Red Cross Society, Faculty of Medicine, Chulalongkorn University, Bangkok, Thailand
- Orathai Jirapongsananuruk
- 8Division of Allergy and Clinical Immunology, Department of Pediatrics, Faculty of Medicine Siriraj Hospital, Mahidol University, Bangkok, Thailand
- Teerapol Chantveerawong
- 9Division of Allergy and Clinical Immunology, Department of Medicine, Phramongkutklao Hospital, Bangkok, Thailand
- Wasu Kamchaisatian
- 0Division of Pediatrics Allergy and Immunology, Department of Pediatrics, Faculty of Medicine Ramathibodi Hospital, Mahidol University, Bangkok, Thailand
- Lee Lee Chan
- 1Subang Jaya Medical Centre, Subang Jaya, Malaysia
- Mia Tuang Koh
- 5Department of Paediatrics, Faculty of Medicine, University Malaya, Kuala Lumpur, Malaysia
- Ke Juin Wong
- 2Department of Paediatrics, Likas Hospital, Ministry of Health, Sabah, Malaysia
- Siew Moy Fong
- 2Department of Paediatrics, Likas Hospital, Ministry of Health, Sabah, Malaysia
- Meow-Keong Thong
- 3Genetics and Metabolism Unit, Department of Paediatrics, Faculty of Medicine, University of Malaya, Kuala Lumpur, Malaysia
- Zarina Abdul Latiff
- 4Department of Pediatrics, Universiti Kebangsaan Malaysia, Kuala Lumpur, Malaysia
- Lokman Mohd Noh
- 4Department of Pediatrics, Universiti Kebangsaan Malaysia, Kuala Lumpur, Malaysia
- Lokman Mohd Noh
- 5Department of Paediatrics, Hospital Tunku Azizah, Ministry of Health Malaysia, Kuala Lumpur, Malaysia
- Rajiva de Silva
- 6Department of Immunology, Medical Research Institute, Colombo, Sri Lanka
- Zineb Jouhadi
- 7Department of Pediatric Infectious Diseases, Children’s Hospital CHU Ibn Rochd, University Hassan 2, Casablanca, Morocco
- Khulood Al-Saad
- 8Department of Pediatrics, Salmaniya Medical Complex, Manama, Bahrain
- Pandiarajan Vignesh
- Pediatric Allergy and Immunology Unit, Department of Pediatrics, Advanced Pediatrics Centre, Postgraduate Institute of Medical Education and Research, Chandigarh, India
- Ankur Kumar Jindal
- Pediatric Allergy and Immunology Unit, Department of Pediatrics, Advanced Pediatrics Centre, Postgraduate Institute of Medical Education and Research, Chandigarh, India
- Amit Rawat
- Pediatric Allergy and Immunology Unit, Department of Pediatrics, Advanced Pediatrics Centre, Postgraduate Institute of Medical Education and Research, Chandigarh, India
- Anju Gupta
- Pediatric Allergy and Immunology Unit, Department of Pediatrics, Advanced Pediatrics Centre, Postgraduate Institute of Medical Education and Research, Chandigarh, India
- Deepti Suri
- Pediatric Allergy and Immunology Unit, Department of Pediatrics, Advanced Pediatrics Centre, Postgraduate Institute of Medical Education and Research, Chandigarh, India
- Jing Yang
- Department of Paediatrics and Adolescent Medicine, School of Clinical Medicine, Li Ka Shing Faculty of Medicine, The University of Hong Kong, Hong Kong, Hong Kong SAR, China
- Elaine Yuen-Ling Au
- 9Division of Clinical Immunology, Department of Pathology, Queen Mary Hospital, Hong Kong, Hong Kong SAR, China
- Janette Siu-Yin Kwok
- 0Division of Transplantation and Immunogenetics, Department of Pathology, Queen Mary Hospital, Hong Kong, Hong Kong SAR, China
- Siu-Yuen Chan
- Department of Paediatrics and Adolescent Medicine, School of Clinical Medicine, Li Ka Shing Faculty of Medicine, The University of Hong Kong, Hong Kong, Hong Kong SAR, China
- Wayland Yuk-Fun Hui
- Department of Paediatrics and Adolescent Medicine, School of Clinical Medicine, Li Ka Shing Faculty of Medicine, The University of Hong Kong, Hong Kong, Hong Kong SAR, China
- Gilbert T. Chua
- Department of Paediatrics and Adolescent Medicine, School of Clinical Medicine, Li Ka Shing Faculty of Medicine, The University of Hong Kong, Hong Kong, Hong Kong SAR, China
- Jaime Rosa Duque
- Department of Paediatrics and Adolescent Medicine, School of Clinical Medicine, Li Ka Shing Faculty of Medicine, The University of Hong Kong, Hong Kong, Hong Kong SAR, China
- Kai-Ning Cheong
- 1Hong Kong Children’s Hospital, Hong Kong, Hong Kong SAR, China
- Patrick Chun Yin Chong
- 2Virtus Medical, Hong Kong, Hong Kong SAR, China
- Marco Hok Kung Ho
- 2Virtus Medical, Hong Kong, Hong Kong SAR, China
- Tsz-Leung Lee
- 1Hong Kong Children’s Hospital, Hong Kong, Hong Kong SAR, China
- Wilfred Hing-Sang Wong
- Department of Paediatrics and Adolescent Medicine, School of Clinical Medicine, Li Ka Shing Faculty of Medicine, The University of Hong Kong, Hong Kong, Hong Kong SAR, China
- Wanling Yang
- Department of Paediatrics and Adolescent Medicine, School of Clinical Medicine, Li Ka Shing Faculty of Medicine, The University of Hong Kong, Hong Kong, Hong Kong SAR, China
- Pamela P. Lee
- Department of Paediatrics and Adolescent Medicine, School of Clinical Medicine, Li Ka Shing Faculty of Medicine, The University of Hong Kong, Hong Kong, Hong Kong SAR, China
- Wenwei Tu
- Department of Paediatrics and Adolescent Medicine, School of Clinical Medicine, Li Ka Shing Faculty of Medicine, The University of Hong Kong, Hong Kong, Hong Kong SAR, China
- Xi-Qiang Yang
- Children’s Hospital, Chongqing Medical University, Chongqing, China
- Yu Lung Lau
- Department of Paediatrics and Adolescent Medicine, School of Clinical Medicine, Li Ka Shing Faculty of Medicine, The University of Hong Kong, Hong Kong, Hong Kong SAR, China
- DOI
- https://doi.org/10.3389/fimmu.2022.883446
- Journal volume & issue
-
Vol. 13
Abstract
To address inborn errors of immunity (IEI) which were underdiagnosed in resource-limited regions, our centre developed and offered free genetic testing for the most common IEI by Sanger sequencing (SS) since 2001. With the establishment of The Asian Primary Immunodeficiency (APID) Network in 2009, the awareness and definitive diagnosis of IEI were further improved with collaboration among centres caring for IEI patients from East and Southeast Asia. We also started to use whole exome sequencing (WES) for undiagnosed cases and further extended our collaboration with centres from South Asia and Africa. With the increased use of Next Generation Sequencing (NGS), we have shifted our diagnostic practice from SS to WES. However, SS was still one of the key diagnostic tools for IEI for the past two decades. Our centre has performed 2,024 IEI SS genetic tests, with in-house protocol designed specifically for 84 genes, in 1,376 patients with 744 identified to have disease-causing mutations (54.1%). The high diagnostic rate after just one round of targeted gene SS for each of the 5 common IEI (X-linked agammaglobulinemia (XLA) 77.4%, Wiskott–Aldrich syndrome (WAS) 69.2%, X-linked chronic granulomatous disease (XCGD) 59.5%, X-linked severe combined immunodeficiency (XSCID) 51.1%, and X-linked hyper-IgM syndrome (HIGM1) 58.1%) demonstrated targeted gene SS should remain the first-tier genetic test for the 5 common X-linked IEI.
Keywords
- inborn errors of immunity
- primary immunodeficiency diseases
- targeted gene
- Sanger sequencing
- whole exome sequencing
- next generation sequencing