Future Care Pathways – A report from the 1st workshop of the EHC Think Tank Workstream on Future Care Pathways

Abstract

A care pathway is defined as “a complex intervention for the mutual decision-making and organisation of care processes for a well-defined group of patients during a well-defined period.” The European Haemophilia Consortium (EHC) established a Think Tank Workstream on Future Care Pathways to identify and address key challenges in shaping future pathways that meet the needs of people with rare diseases while remaining practicable and affordable to healthcare providers in countries with different budgets and resources. This workstream is particularly timely as the introduction of innovative therapies is adding to the complexity of care pathways in some rare conditions.

Keywords

• care pathway
• patient journey
• prioritisation
• baseline
• digital health
• fragmentation