BMJ Open (Jan 2024)
Priority populations’ experiences of isolation, quarantine and distancing for COVID-19: protocol for a longitudinal cohort study (Optimise Study)
- Alex Collie,
- Sophie Hill,
- Margaret Hellard,
- Alisa Pedrana,
- Peng Wang,
- Stephanie Curtis,
- Margaret Danchin,
- Jessica Kaufman,
- Rebecca Ryan,
- Joseph S Doyle,
- Robert Power,
- Danny Vadasz,
- Lisa Gibbs,
- Nick Scott,
- Jane Oliver,
- Stephanie Fletcher-Lartey,
- Caroline Homer,
- Danielle Horyniak,
- Anna Wilkinson,
- Angela Davis,
- Phoebe Kerr,
- Mark A Stoové,
- Anna Bowring,
- Bronwen Merner,
- Jack Wallace,
- Long Nguyen,
- Edwin Jit Leung Kwong,
- Katherine Heath,
- Alexander J Thomas,
- Freya Saich,
- Stephanie Munari,
- Aimee Altermatt,
- Thi Nguyen,
- Kathryn Young,
- Deborah Osborne,
- Martha Vazquez Corona,
- Tianhui Ke,
- Yanqin Zhang,
- Limya Eisa,
- Adil Al-Qassas,
- Deng Malith,
- Karen Block,
- Freya Shearer,
- Niamh Meagher,
- Ali Hassani,
- Giovanni Radhitio Putra Sadewo,
- Garry Robins,
- Colin Gallagher,
- Petr Matous,
- Bopha Roden,
- Maedeh Aboutalebi Karkavandi,
- James Coutinho,
- Chiara Broccatelli,
- Johan Koskinen,
- Nicholas Geard,
- Alison Coelho,
- Dean Lusher,
- Katherine B Gibney
Affiliations
- Alex Collie
- School of Public Health and Preventive Medicine, Monash University, Melbourne, Victoria, Australia
- Sophie Hill
- Centre for Health Communication and Participation, La Trobe University, Melbourne, Victoria, Australia
- Margaret Hellard
- School of Public Health and Preventive Medicine, Monash University, Melbourne, Victoria, Australia
- Alisa Pedrana
- Burnet Institute, Melbourne, Victoria, Australia
- Peng Wang
- School of Nursing and Health, Zhengzhou University, Zhengzhou, Henan, China
- Stephanie Curtis
- Department of Infectious Diseases, Monash University, Clayton, Victoria, Australia
- Margaret Danchin
- Murdoch Childrens Research Institute, Parkville, Victoria, Australia
- Jessica Kaufman
- Vaccine Uptake Group, Murdoch Childrens Research Institute, Parkville, Victoria, Australia
- Rebecca Ryan
- Centre for Health Communication and Participation, La Trobe University, Melbourne, Victoria, Australia
- Joseph S Doyle
- Department of Infectious Diseases, Monash University, Clayton, Victoria, Australia
- Robert Power
- Burnet Institute, Melbourne, Victoria, Australia
- Danny Vadasz
- Health Issues Centre, Melbourne, Victoria, Australia
- Lisa Gibbs
- Melbourne School of Population and Global Health, The University of Melbourne, Melbourne, Victoria, Australia
- Nick Scott
- Burnet Institute, Melbourne, Victoria, Australia
- Jane Oliver
- Department of Infectious Diseases, The Peter Doherty Institute for Infection and Immunity, Melbourne, Victoria, Australia
- Stephanie Fletcher-Lartey
- Burnet Institute, Melbourne, Victoria, Australia
- Caroline Homer
- 23 Burnet Institute, Melbourne, Victoria, Australia
- Danielle Horyniak
- Burnet Institute, Melbourne, Victoria, Australia
- Anna Wilkinson
- Burnet Institute, Melbourne, Victoria, Australia
- Angela Davis
- Burnet Institute, Melbourne, Victoria, Australia
- Phoebe Kerr
- Burnet Institute, Melbourne, Victoria, Australia
- Mark A Stoové
- 2 Burnet Institute, Melbourne, Victoria, Australia
- Anna Bowring
- Burnet Institute, Melbourne, Victoria, Australia
- Bronwen Merner
- Centre for Health Communication and Participation, La Trobe University, Melbourne, Victoria, Australia
- Jack Wallace
- Burnet Institute, Melbourne, Victoria, Australia
- Long Nguyen
- Burnet Institute, Melbourne, Victoria, Australia
- Edwin Jit Leung Kwong
- Burnet Institute, Melbourne, Victoria, Australia
- Katherine Heath
- 2 Burnet Institute, Melbourne, Victoria, Australia
- Alexander J Thomas
- Burnet Institute, Melbourne, Victoria, Australia
- Freya Saich
- Burnet Institute, Melbourne, Victoria, Australia
- Stephanie Munari
- Burnet Institute, Melbourne, Victoria, Australia
- Aimee Altermatt
- Burnet Institute, Melbourne, Victoria, Australia
- Thi Nguyen
- Burnet Institute, Melbourne, Victoria, Australia
- Kathryn Young
- Burnet Institute, Melbourne, Victoria, Australia
- Deborah Osborne
- Burnet Institute, Melbourne, Victoria, Australia
- Martha Vazquez Corona
- Melbourne School of Population and Global Health, The University of Melbourne, Melbourne, Victoria, Australia
- Tianhui Ke
- Burnet Institute, Melbourne, Victoria, Australia
- Yanqin Zhang
- Burnet Institute, Melbourne, Victoria, Australia
- Limya Eisa
- Burnet Institute, Melbourne, Victoria, Australia
- Adil Al-Qassas
- Burnet Institute, Melbourne, Victoria, Australia
- Deng Malith
- Burnet Institute, Melbourne, Victoria, Australia
- Karen Block
- Melbourne School of Population and Global Health, The University of Melbourne, Melbourne, Victoria, Australia
- Freya Shearer
- Centre for Epidemiology and Biostatistics, Melbourne School of Population and Global Health, The University of Melbourne, Melbourne, Victoria, Australia
- Niamh Meagher
- Department of Infectious Diseases, The Peter Doherty Institute for Infection and Immunity, Melbourne, Victoria, Australia
- Ali Hassani
- SNA Toolbox, Melbourne, Victoria, Australia
- Giovanni Radhitio Putra Sadewo
- Deakin University Faculty of Arts and Education, Melbourne, Victoria, Australia
- Garry Robins
- Melbourne School of Psychological Sciences, The University of Melbourne, Melbourne, Victoria, Australia
- Colin Gallagher
- Melbourne School of Population and Global Health, The University of Melbourne, Melbourne, Victoria, Australia
- Petr Matous
- The University of Sydney Faculty of Engineering and Information Technologies, Sydney, New South Wales, Australia
- Bopha Roden
- School of Business, Law and Entrepreneurship, Swinburne University of Technology, Hawthorn, Victoria, Australia
- Maedeh Aboutalebi Karkavandi
- Melbourne School of Population and Global Health, The University of Melbourne, Melbourne, Victoria, Australia
- James Coutinho
- School of Business, Law and Entrepreneurship, Swinburne University of Technology, Hawthorn, Victoria, Australia
- Chiara Broccatelli
- Institute for Social Science Research, The University of Queensland, Saint Lucia, Queensland, Australia
- Johan Koskinen
- Melbourne School of Psychological Sciences, The University of Melbourne, Melbourne, Victoria, Australia
- Nicholas Geard
- School of Computing & Information Systems, The University of Melbourne, Melbourne, Victoria, Australia
- Alison Coelho
- Coelho Networks, Melbourne, Victoria, Australia
- Dean Lusher
- School of Business, Law and Entrepreneurship, Swinburne University of Technology, Hawthorn, Victoria, Australia
- Katherine B Gibney
- Department of Infectious Diseases, The Peter Doherty Institute for Infection and Immunity, Melbourne, Victoria, Australia
- DOI
- https://doi.org/10.1136/bmjopen-2023-076907
- Journal volume & issue
-
Vol. 14,
no. 1
Abstract
Introduction Longitudinal studies can provide timely and accurate information to evaluate and inform COVID-19 control and mitigation strategies and future pandemic preparedness. The Optimise Study is a multidisciplinary research platform established in the Australian state of Victoria in September 2020 to collect epidemiological, social, psychological and behavioural data from priority populations. It aims to understand changing public attitudes, behaviours and experiences of COVID-19 and inform epidemic modelling and support responsive government policy.Methods and analysis This protocol paper describes the data collection procedures for the Optimise Study, an ongoing longitudinal cohort of ~1000 Victorian adults and their social networks. Participants are recruited using snowball sampling with a set of seeds and two waves of snowball recruitment. Seeds are purposively selected from priority groups, including recent COVID-19 cases and close contacts and people at heightened risk of infection and/or adverse outcomes of COVID-19 infection and/or public health measures. Participants complete a schedule of monthly quantitative surveys and daily diaries for up to 24 months, plus additional surveys annually for up to 48 months. Cohort participants are recruited for qualitative interviews at key time points to enable in-depth exploration of people’s lived experiences. Separately, community representatives are invited to participate in community engagement groups, which review and interpret research findings to inform policy and practice recommendations.Ethics and dissemination The Optimise longitudinal cohort and qualitative interviews are approved by the Alfred Hospital Human Research Ethics Committee (# 333/20). The Optimise Study CEG is approved by the La Trobe University Human Ethics Committee (# HEC20532). All participants provide informed verbal consent to enter the cohort, with additional consent provided prior to any of the sub studies. Study findings will be disseminated through public website (https://optimisecovid.com.au/study-findings/) and through peer-reviewed publications.Trial registration number NCT05323799.
