Global Public Health (Jan 2023)

Economic and humanistic burden of HPV-related disease in Indonesia: A qualitative analysis

  • Marisa Felsher,
  • Didik Setiawan,
  • Stefan Varga,
  • Richard Perry,
  • Danielle Riley,
  • Rebecca Newman,
  • Abigail Beveridge,
  • Charlotte Oswald,
  • Smita Kothari,
  • Isaya Sukarom,
  • Maarten Postma

DOI
https://doi.org/10.1080/17441692.2023.2237096
Journal volume & issue
Vol. 18, no. 1

Abstract

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The burden of human papillomavirus (HPV) and HPV-related cancers and genital warts is increasing in developing countries, including Indonesia. The objective of this study was to qualitatively explore the humanistic and economic burden of these HPV-related diseases in patients in Indonesia. In 2021, in-depth interviews and focus groups were conducted with patients (N = 18) with HPV-related diseases and healthcare professionals (HCPs; N = 10) specialised in treating these patients. Interviews explored the physical, mental, social, and economic burden of HPV-related diseases. Patients emphasised the psychological and social burden of HPV-related diseases, which negatively impacted their mental state and close relationships. Treatment for HPV-related diseases was also associated with a substantial cost, which health insurance only partially alleviated. HCPs understood the physical negative impact of HPV-related diseases, but some understated patients’ social, psychological, and financial burden. This research underscores the substantial economic and humanistic burden of HPV-related diseases that could be prevented by vaccination. In addition, it highlights the need for novel interventions to reduce negative psychosocial consequences of HPV-related diseases in Indonesia. Increased HCP education of the broader humanistic impacts of HPV-related diseases may improve patient support and increase awareness for preventive strategy.

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