Patient Preference and Adherence (Jul 2022)
Understanding the Treatment Preferences of People Living with Schizophrenia in Australia; A Patient Value Mapping Study
Abstract
Simon Fifer,1 Brittany Keen,1 Richard Newton,2 Andrea Puig,3 Marija McGeachie4 1Community and Patient Preference Research, Sydney, NSW, Australia; 2Monash University, Melbourne, VIC, Australia; 3Real World Evidence Department, Janssen-Cilag Australia Pty Ltd, Sydney, NSW, Australia; 4Department of Medical and Scientific Affairs, Janssen-Cilag Australia Pty Ltd, Sydney, NSW, AustraliaCorrespondence: Andrea Puig, Real World Evidence Department, Janssen-Cilag Australia Pty Ltd, 66 Waterloo Road, Macquarie Park, Sydney, NSW, 2113, Australia, Tel +61-4-2912-8695, Fax +61 2 9815 3200, Email [email protected]: To examine the treatment and long-term outcome preferences for people living with schizophrenia.Patients and Methods: Sixty-six Australian adults, living with schizophrenia completed a novel online survey with six sections: Demographic characteristics; Disease history; Quality-of-life; Patient support programmes; Discrete Choice Experiment, and Best-Worst Scaling exercise.Results: Participants indicated that they preferred to be involved in treatment decision with their doctor. A minority of participants reported having been previously involved in a patient support programme (28.8%) and only one in six participants had a National Disability Insurance Scheme (NDIS) package (16.7%) with over a third of participants indicating that they were ineligible (37.9%). Participants’ average quality-of-life score was 60%.Conclusion: Recent hospitalisation influenced the relative importance of treatment attributes, with effectiveness on hearing voices being the most important treatment attribute. The most important long-term goals were having a stable place to live, being independent, and physical health. People with schizophrenia care about their long-term functional recovery outcomes, rating symptom control and independence as their highest priority. They want to be part of the treatment conversation with their doctors. Therefore, psychiatrists are encouraged to use shared decision-making to establish the treatment course that best aligns with individuals’ long-term goals.Keywords: discrete choice experiment, patient preference, patient value mapping, schizophrenia, shared decision-making, treatment goals
