IJTLD Open (Mar 2024)

Perspectives from the 2nd International Post-Tuberculosis Symposium: mobilising advocacy and research for improved outcomes

  • B.W. Allwood,
  • R. Nightingale,
  • G. Agbota,
  • S. Auld,
  • G.P. Bisson,
  • A. Byrne,
  • R. Dunn,
  • D. Evans,
  • G. Hoddinott,
  • G. Günther,
  • Z. Islam,
  • J.C. Johnston,
  • G. Kalyatanda,
  • C. Khosa,
  • S. Marais,
  • G. Makanda,
  • O.M. Mashedi,
  • J. Meghji,
  • C. Mitnick,
  • C. Mulder,
  • E. Nkereuwem,
  • O. Nkereuwem,
  • O.B. Ozoh,
  • A. Rachow,
  • K. Romanowski,
  • J.A. Seddon,
  • I. Schoeman,
  • F. Thienemann,
  • N.F. Walker,
  • D.T. Wademan,
  • R. Wallis,
  • M.M. van der Zalm

DOI
https://doi.org/10.5588/ijtldopen.23.0619
Journal volume & issue
Vol. 1, no. 3
pp. 111 – 123

Abstract

Read online

In 2020, it was estimated that there were 155 million survivors of TB alive, all at risk of possible post TB disability. The 2nd International Post-Tuberculosis Symposium (Stellenbosch, South Africa) was held to increase global awareness and empower TB-affected communities to play an active role in driving the agenda. We aimed to update knowledge on post-TB life and illness, identify research priorities, build research collaborations and highlight the need to embed lung health outcomes in clinical TB trials and programmatic TB care services. The symposium was a multidisciplinary meeting that included clinicians, researchers, TB survivors, funders and policy makers. Ten academic working groups set their own goals and covered the following thematic areas: 1) patient engagement and perspectives; 2) epidemiology and modelling; 3) pathogenesis of post-TB sequelae; 4) post-TB lung disease; 5) cardiovascular and pulmonary vascular complications; 6) neuromuscular & skeletal complications; 7) paediatric complications; 8) economic-social and psychological (ESP) consequences; 9) prevention, treatment and management; 10) advocacy, policy and stakeholder engagement. The working groups provided important updates for their respective fields, highlighted research priorities, and made progress towards the standardisation and alignment of post-TB outcomes and definitions.

Keywords