Barriers to self‐management of patients with adenomyosis: A qualitative study

Abstract

Abstract Aim This study aims to explore the barriers to self‐management of patients with adenomyosis. Design Phenomenological qualitative methodology. Methods Totally, 18 patients with diagnosis of adenomyosis participated in this study. We used purposive sampling for recruitment until data saturation. A qualitative research was conducted using in‐depth interviews, which were tape recorded and transcribed verbatim. Colaizzi's method was used to analyse the contents of interviews. Results This study presented important information about the barriers to self‐management of patients with adenomyosis in China. Four themes were identified: “lack of disease knowledge,” “challenges and dilemmas of daily life,” “multidimensional negative emotions” and “personalized supporting requirements.” Conclusion The study provided new insights into the barriers to self‐management of patients with adenomyosis, including physical, psychological, daily life and self‐image problems, and the patients need emotional and social support, which recommended that professionals should provide authoritative health education and multiple support.

Keywords

• adenomyosis
• Chinese women
• nursing
• qualitative research
• self‐management