Integrating community voices in the research continuum: Perspectives on a consultation service

Crystal D. Evans; Joy P. Nanda; Pamela Ouyang; Lee Bone; Samuel Byiringiro; Cyd Lacanienta; Roger Clark; Christine Weston; Hae-Ra Han; Mia Terkowitz; Barbara Bates-Hopkins; Panagis Galiatsatos; Ashley Jingzhi Xu; Sarah Stevens; Cheryl R. Himmelfarb

doi:10.1017/cts.2023.600

Journal of Clinical and Translational Science (Jan 2023)

Integrating community voices in the research continuum: Perspectives on a consultation service

Crystal D. Evans,
Joy P. Nanda,
Pamela Ouyang,
Lee Bone,
Samuel Byiringiro,
Cyd Lacanienta,
Roger Clark,
Christine Weston,
Hae-Ra Han,
Mia Terkowitz,
Barbara Bates-Hopkins,
Panagis Galiatsatos,
Ashley Jingzhi Xu,
Sarah Stevens,
Cheryl R. Himmelfarb

Affiliations

Crystal D. Evans: ORCiD; Institute for Clinical and Translational Research (ICTR), Johns Hopkins University, Baltimore, MD, USA Community Research Advisory Council, The Johns Hopkins ICTR, Baltimore, MD, USA
Joy P. Nanda: Community Research Advisory Council, The Johns Hopkins ICTR, Baltimore, MD, USA
Pamela Ouyang: Institute for Clinical and Translational Research (ICTR), Johns Hopkins University, Baltimore, MD, USA Community Research Advisory Council, The Johns Hopkins ICTR, Baltimore, MD, USA The Johns Hopkins University School of Medicine, Baltimore, MD, USA
Lee Bone: Institute for Clinical and Translational Research (ICTR), Johns Hopkins University, Baltimore, MD, USA Community Research Advisory Council, The Johns Hopkins ICTR, Baltimore, MD, USA The Johns Hopkins University School of Medicine, Baltimore, MD, USA The Johns Hopkins University Bloomberg School of Public Health, Baltimore, MD, USA The Johns Hopkins University School of Nursing, Baltimore, MD, USA
Samuel Byiringiro: ORCiD; Institute for Clinical and Translational Research (ICTR), Johns Hopkins University, Baltimore, MD, USA Community Research Advisory Council, The Johns Hopkins ICTR, Baltimore, MD, USA The Johns Hopkins University School of Nursing, Baltimore, MD, USA
Cyd Lacanienta: ORCiD; Institute for Clinical and Translational Research (ICTR), Johns Hopkins University, Baltimore, MD, USA Community Research Advisory Council, The Johns Hopkins ICTR, Baltimore, MD, USA
Roger Clark: Community Research Advisory Council, The Johns Hopkins ICTR, Baltimore, MD, USA
Christine Weston: Institute for Clinical and Translational Research (ICTR), Johns Hopkins University, Baltimore, MD, USA Community Research Advisory Council, The Johns Hopkins ICTR, Baltimore, MD, USA The Johns Hopkins University Bloomberg School of Public Health, Baltimore, MD, USA
Hae-Ra Han: ORCiD; Institute for Clinical and Translational Research (ICTR), Johns Hopkins University, Baltimore, MD, USA Community Research Advisory Council, The Johns Hopkins ICTR, Baltimore, MD, USA The Johns Hopkins University School of Medicine, Baltimore, MD, USA The Johns Hopkins University Bloomberg School of Public Health, Baltimore, MD, USA
Mia Terkowitz: Institute for Clinical and Translational Research (ICTR), Johns Hopkins University, Baltimore, MD, USA Community Research Advisory Council, The Johns Hopkins ICTR, Baltimore, MD, USA
Barbara Bates-Hopkins: Institute for Clinical and Translational Research (ICTR), Johns Hopkins University, Baltimore, MD, USA Community Research Advisory Council, The Johns Hopkins ICTR, Baltimore, MD, USA The Johns Hopkins University Bloomberg School of Public Health, Baltimore, MD, USA
Panagis Galiatsatos: Institute for Clinical and Translational Research (ICTR), Johns Hopkins University, Baltimore, MD, USA Community Research Advisory Council, The Johns Hopkins ICTR, Baltimore, MD, USA The Johns Hopkins University School of Medicine, Baltimore, MD, USA
Ashley Jingzhi Xu: Institute for Clinical and Translational Research (ICTR), Johns Hopkins University, Baltimore, MD, USA Community Research Advisory Council, The Johns Hopkins ICTR, Baltimore, MD, USA The Johns Hopkins University School of Nursing, Baltimore, MD, USA
Sarah Stevens: Institute for Clinical and Translational Research (ICTR), Johns Hopkins University, Baltimore, MD, USA Community Research Advisory Council, The Johns Hopkins ICTR, Baltimore, MD, USA
Cheryl R. Himmelfarb: Institute for Clinical and Translational Research (ICTR), Johns Hopkins University, Baltimore, MD, USA Community Research Advisory Council, The Johns Hopkins ICTR, Baltimore, MD, USA The Johns Hopkins University School of Medicine, Baltimore, MD, USA The Johns Hopkins University Bloomberg School of Public Health, Baltimore, MD, USA The Johns Hopkins University School of Nursing, Baltimore, MD, USA

DOI: https://doi.org/10.1017/cts.2023.600
Journal volume & issue: Vol. 7

Abstract

Read online

The Community Research Advisory Council (C-RAC) of the Johns Hopkins Institute for Clinical and Translational Research was established in 2009 to provide community-engaged research consultation services. In 2016–2017, C-RAC members and researchers were surveyed on their consultation experiences. Survey results and a 2019 stakeholder meeting proceeding helped redesign the consultation services. Transitioning to virtual consultations during COVID-19, the redesigning involved increasing visibility, providing consultation materials in advance, expanding member training, and effective communications. An increase in consultations from 28 (2009–2017) to 114 (2020–2022) was observed. Implementing stakeholder-researcher inputs is critical to holistic and sustained community-engaged research.

Published in Journal of Clinical and Translational Science

ISSN: 2059-8661 (Online)
Publisher: Cambridge University Press
Country of publisher: United Kingdom
LCC subjects: Medicine
Website: https://www.cambridge.org/core/journals/journal-of-clinical-and-translational-science

About the journal

Abstract

Keywords