Journal of Cancer Rehabilitation (May 2024)

“I JUST FEEL LIKE MY BRAIN IS NOT THE SAME”: A PRELIMINARY MIXED METHODS EXAMINATION OF HELP-SEEKING BEHAVIORS AMONG ADULTS WITH CANCER-RELATED COGNITIVE IMPAIRMENT

  • Patricia L. Geels,
  • Karen Flynn,
  • Kieran J. Fogarty,
  • Rob Lyerla

DOI
https://doi.org/10.48252/JCR96
Journal volume & issue
Vol. 7, no. 2
pp. 63 – 74

Abstract

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Purpose This study aimed to investigate help-seeking behaviors and interventions among cancer survivors with self-reported Cancer-Related Cognitive Impairment (CRCI), focusing on understanding the differences between help-seekers and non-help-seekers regarding demographics and cognitive- communication scores. Method A cross-sectional survey was administered to adult cancer survivors to collect data on self-reported cognitive-communication deficits, social participation, social satisfaction, and help-seeking behaviors. Linear regression analysis was used to assess the relationship between self-reported cognitive-communication scores and help-seeking behaviors, and logistic regression analysis was used to determine the predictors of seeking help for CRCI. Results Approximately 27.38% of the participants sought help for their CRCI, with healthcare providers, independent searching, and personal connections being the most common sources of assistance. The interventions utilized included medication, physical activity, and counseling. However, 75% of participants did not engage in specific help-seeking behaviors. Age was identified as a significant predictor of seeking help in individuals with self-reported CRCI. Conclusion Qualitative thematic analysis revealed barriers to help-seeking, including lack of awareness, reluctance, perception of CRCI as insignificant, and lack of validation by healthcare professionals. This study underscores the importance of improved collaboration between oncology and rehabilitation teams, better dissemination of information, and increased support for CRCI survivors. Understanding the characteristics of help-seekers and non-help- seekers is crucial for targeted education efforts and for enhancing survivors' quality of life.

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