Научно-практическая ревматология (Oct 2015)
RHEUMATOID ARTHRITIS IN THE RUSSIAN FEDERATION ACCORDING TO RUSSIAN ARTHRITIS REGISTRY DATA (COMMUNICATION I)
- E. L. Nasonov,
- D. E. Karateev,
- A. M. Satybaldyev,
- E. L. Luchikhina,
- G. V. Lukina,
- M. V. Nikolenko,
- M. A. Bilinskaya,
- M. E. Dmitrieva,
- L. A. Bogoderova,
- N. A. Lapkina,
- N. V. Chichasova,
- V. N. Sorotskaya,
- D. I. Abdulganieva,
- R. G. Mukhina,
- G. R. Gafurova,
- V. I. Mazurov,
- D. S. Chakieva,
- R. R. Samigullina,
- E. G. Kuznetsova,
- N. V. Demidova,
- N. Yu. Nikishina,
- E. V. Fedorenko,
- E. V. Gerasimova,
- E. A. Zlepko,
- N. V. Muravyeva,
- G. I. Gridneva,
- O. A. Rumyantseva,
- K. A. Kasumova,
- A. V. Alekseeva,
- N. S. Shornikova,
- S. A. Vladimirov,
- D. A. Gukasyan,
- L. N. Tyurina,
- L. N. Denisov,
- T. G. Oskilko,
- E. A. Koshkarova
Affiliations
- E. L. Nasonov
- V.A. Nasonova Research Institute of Rheumatology, Moscow, Russia 34A, Kashirskoe Shosse, Moscow 115522
- D. E. Karateev
- V.A. Nasonova Research Institute of Rheumatology, Moscow, Russia 34A, Kashirskoe Shosse, Moscow 115522
- A. M. Satybaldyev
- V.A. Nasonova Research Institute of Rheumatology, Moscow, Russia 34A, Kashirskoe Shosse, Moscow 115522
- E. L. Luchikhina
- V.A. Nasonova Research Institute of Rheumatology, Moscow, Russia 34A, Kashirskoe Shosse, Moscow 115522
- G. V. Lukina
- V.A. Nasonova Research Institute of Rheumatology, Moscow, Russia 34A, Kashirskoe Shosse, Moscow 115522 Moscow Clinical Researchand-Practical Center, Moscow Healthcare Department, Moscow, Russia 86, Entuziasts Shosse, Moscow 111123
- M. V. Nikolenko
- N.I. Pirogov City Clinical Hospital One, Moscow, Russia 8, Leninsky Prospect, Moscow 117049
- M. A. Bilinskaya
- N.I. Pirogov City Clinical Hospital One, Moscow, Russia 8, Leninsky Prospect, Moscow 117049
- M. E. Dmitrieva
- N.I. Pirogov City Clinical Hospital One, Moscow, Russia 8, Leninsky Prospect, Moscow 117049
- L. A. Bogoderova
- State Novosibirsk Regional Clinical Hospital, Novosibirsk, Russia 130, Nemirovich-Danchenko St., Novosibirsk 630087
- N. A. Lapkina
- Yaroslavl State Medical University, Ministry of health of Russia, Yaroslavl, Russia 5, Revolyutsionnaya St., Yaroslavl 150000
- N. V. Chichasova
- I.M. Sechenov First Moscow State Medical University, Ministry of Health of Russia, Moscow, Russia 8, Trubetskaya St., Build. 2, Moscow 119991
- V. N. Sorotskaya
- Tula Regional Medical Information Analysis Center, Tula, Russia 114-G, Oboronnaya St., Tula 300045
- D. I. Abdulganieva
- Kazan State Medical University, Kazan, Russia 49, Butlerov St., Kazan 420012
- R. G. Mukhina
- City Clinical Hospital Seven, Kazan, Russia 54, Marshal Chuikov St., Kazan 420103
- G. R. Gafurova
- City Clinical Hospital Seven, Kazan, Russia 54, Marshal Chuikov St., Kazan 420103
- V. I. Mazurov
- I.I. Mechnikov North-Western State Medical University, Ministry of Health of Russia, Saint Petersburg, Russia 41, Kirochnaya St., Saint Petersburg 191015
- D. S. Chakieva
- I.I. Mechnikov North-Western State Medical University, Ministry of Health of Russia, Saint Petersburg, Russia 41, Kirochnaya St., Saint Petersburg 191015
- R. R. Samigullina
- I.I. Mechnikov North-Western State Medical University, Ministry of Health of Russia, Saint Petersburg, Russia 41, Kirochnaya St., Saint Petersburg 191015
- E. G. Kuznetsova
- Regional Clinical Hospital One, Tyumen, Russia 7, Fourth Kilometer, Chervishevsky Road, Tyumen 625032
- N. V. Demidova
- V.A. Nasonova Research Institute of Rheumatology, Moscow, Russia 34A, Kashirskoe Shosse, Moscow 115522
- N. Yu. Nikishina
- V.A. Nasonova Research Institute of Rheumatology, Moscow, Russia 34A, Kashirskoe Shosse, Moscow 115522
- E. V. Fedorenko
- V.A. Nasonova Research Institute of Rheumatology, Moscow, Russia 34A, Kashirskoe Shosse, Moscow 115522
- E. V. Gerasimova
- V.A. Nasonova Research Institute of Rheumatology, Moscow, Russia 34A, Kashirskoe Shosse, Moscow 115522
- E. A. Zlepko
- V.A. Nasonova Research Institute of Rheumatology, Moscow, Russia 34A, Kashirskoe Shosse, Moscow 115522
- N. V. Muravyeva
- V.A. Nasonova Research Institute of Rheumatology, Moscow, Russia 34A, Kashirskoe Shosse, Moscow 115522
- G. I. Gridneva
- V.A. Nasonova Research Institute of Rheumatology, Moscow, Russia 34A, Kashirskoe Shosse, Moscow 115522
- O. A. Rumyantseva
- V.A. Nasonova Research Institute of Rheumatology, Moscow, Russia 34A, Kashirskoe Shosse, Moscow 115522
- K. A. Kasumova
- V.A. Nasonova Research Institute of Rheumatology, Moscow, Russia 34A, Kashirskoe Shosse, Moscow 115522
- A. V. Alekseeva
- V.A. Nasonova Research Institute of Rheumatology, Moscow, Russia 34A, Kashirskoe Shosse, Moscow 115522
- N. S. Shornikova
- V.A. Nasonova Research Institute of Rheumatology, Moscow, Russia 34A, Kashirskoe Shosse, Moscow 115522
- S. A. Vladimirov
- V.A. Nasonova Research Institute of Rheumatology, Moscow, Russia 34A, Kashirskoe Shosse, Moscow 115522
- D. A. Gukasyan
- V.A. Nasonova Research Institute of Rheumatology, Moscow, Russia 34A, Kashirskoe Shosse, Moscow 115522
- L. N. Tyurina
- V.A. Nasonova Research Institute of Rheumatology, Moscow, Russia 34A, Kashirskoe Shosse, Moscow 115522
- L. N. Denisov
- V.A. Nasonova Research Institute of Rheumatology, Moscow, Russia 34A, Kashirskoe Shosse, Moscow 115522
- T. G. Oskilko
- V.A. Nasonova Research Institute of Rheumatology, Moscow, Russia 34A, Kashirskoe Shosse, Moscow 115522
- E. A. Koshkarova
- Aston Consulting, Moscow, Russia 11, Zamorenov St., Moscow 123022
- DOI
- https://doi.org/10.14412/1995-4484-2015-472-484
- Journal volume & issue
-
Vol. 53,
no. 5
pp. 472 – 484
Abstract
The paper presents the materials of the Russian Arthritis Registry (OREL) that includes 3276 patients from 11 Russian Federation's largest research-and-practical centers situated in Moscow, Saint Petersburg, Novosibirsk, Kazan, Tula, Yaroslavl, Tyumen. It discusses the main goals of setting up registries, compares the results of an analysis of the data available in the Russian Registry OREL and registries of European countries and the USA. The findings suggest that there is non-uniform information on clinical, laboratory, and instrumental parameters in the national registers of a numberof European countries and the USA. According to its basic characteristics, the Russian Registry OREL compares favorably with a number of other registries in the completeness of data collection, which allows a general idea of rheumatoid arthritis (RA) patients in Russia. For further development of the OREL Registry, it is necessary to concentrate our attention on the following main areas: to improve the quality of filling out documents; to follow-up patients receiving different RA therapy regimens according to the guidelines of the Association of Rheumatologists of Russia for the treatment of RA; to conduct in-depth studies of comorbidity, primarily depressive disorders; to analyze adverse reactions that make RA therapy difficult; to actively use modules for patients' self-rating of their condition; to develop nursing care, etc.
Keywords
