Living with heritable retinoblastoma and the perceived role of regular follow-up at a retinoblastoma survivorship clinic: ‘That is exactly what I have been missing’

• Stina Lou,
• Pernille Axel Gregersen,
• Mikkel Funding,
• Steen F Urbak,
• Jan Alsner,
• Maja H Olsen,
• Jens Overgaard,
• Sandra E Staffieri

Affiliations

Stina Lou

1 Central Denmark Region, DEFACTUM - Public Health and Quality Improvement, Aarhus N, Denmark

Pernille Axel Gregersen

Department of Experimental Clinical Oncology, Aarhus University Hospital, Aarhus, Denmark

Mikkel Funding

5 Department of Ophthalmology, Aarhus University Hospital, Aarhus, Denmark

Steen F Urbak

128 Department of ophthalmology, Aarhus University Hospital, Aarhus, Denmark

Jan Alsner

Department of Experimental Clinical Oncology, Aarhus University Hospital, Aarhus, Denmark

Maja H Olsen

Survivorship and Inequality in Cancer, Danish Cancer Society Research Center, Copenhagen, Denmark

Jens Overgaard

Department of Experimental Clinical Oncology, Aarhus University Hospital, Aarhus, Denmark

Sandra E Staffieri

Centre for Eye Research Australia, Royal Victorian Eye and Ear Hospital, East Melbourne, Victoria, Australia