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Changes in Caregivers Lifestyle after Severe Acquired Brain Injury: A Preliminary Investigation

BioMed Research International. 2018;2018 DOI 10.1155/2018/2824081

 

Journal Homepage

Journal Title: BioMed Research International

ISSN: 2314-6133 (Print); 2314-6141 (Online)

Publisher: Hindawi Limited

LCC Subject Category: Medicine

Country of publisher: United Kingdom

Language of fulltext: English

Full-text formats available: PDF, HTML, ePUB, XML

 

AUTHORS


M. D’Ippolito (Post-Coma Unit, IRCCS Fondazione Santa Lucia, Rome, Italy)

M. Aloisi (Post-Coma Unit, IRCCS Fondazione Santa Lucia, Rome, Italy)

E. Azicnuda (Post-Coma Unit, IRCCS Fondazione Santa Lucia, Rome, Italy)

D. Silvestro (Post-Coma Unit, IRCCS Fondazione Santa Lucia, Rome, Italy)

M. Giustini (Environmental and Social Epidemiology Unit, National Institute of Health, Rome, Italy)

F. Verni (Neuropsychological Rehabilitation Service, IRCCS Fondazione Santa Lucia, Rome, Italy)

R. Formisano (Post-Coma Unit, IRCCS Fondazione Santa Lucia, Rome, Italy)

U. Bivona (Post-Coma Unit, IRCCS Fondazione Santa Lucia, Rome, Italy)

EDITORIAL INFORMATION

Blind peer review

Editorial Board

Instructions for authors

Time From Submission to Publication: 19 weeks

 

Abstract | Full Text

Introduction. Severe acquired brain injury (sABI) is considered the most common cause of death and disability worldwide. sABI patients are supported by their caregivers who often exhibit high rates of psychological distress, mood disorders, and changes in relationship dynamics and family roles. Objectives. To explore lifestyle changes of caregivers of sABI patients during the postacute rehabilitation, by investigating possible differences between primary and secondary caregivers. Primary caregivers spend most of the time with the patient, providing daily care and taking most responsibility for the day-to-day decisions, while secondary caregivers are those who provide additional support. Methods. Three hundred forty-seven caregivers of sABI patients were asked to fill in an unpublished self-report questionnaire to explore their possible lifestyles changes. Results. A statistically significant difference was found between primary and secondary caregivers in time spent in informal caregiving (p<0.001). The primary caregivers reduced all leisure activities compared to secondary carers (p<0.05). Conclusions. By comparing the percentage of leisure activities performed by caregivers before and after the patient’s sABI onset, all caregivers showed high percentages of changes in lifestyle and habits, even though primary caregivers reported more negative lifestyle changes than secondary caregivers. Further studies are needed to investigate needs and burden experienced by caregivers of sABI patients during the postacute rehabilitation phase, also in relation to the patients’ outcome, to address support interventions for them and improve their quality of life.