Lessons learned from developing and sustaining a community-research collaborative through translational research

Abstract

IntroductionThe goal of this project was to document the current state of a community-academic partnership, identifying early successes and lessons learned.MethodsWe employed qualitative methods, semi-structured interviews and document analysis, from 2 data sources to (1) show how the principles of community-based participatory research are enacted through the activities of Addressing Disparities in Asian Populations through Translational Research (ADAPT) and (2) elucidate the barriers and facilitators to adhering to those principles from the perspectives of the members themselves.ResultsIn addition to established community-based participatory research values, understanding individuals’ motivations for participation, the challenges aligning the priorities of community organizations and academic partners, and definitions of success are themes that emerged as key to the process of maintaining this partnership.ConclusionAs the emphasis on community-academic partnerships grows, there is potential for clinical and translational science awards to use community engagement to facilitate translational research beyond the traditional medical spheres of influence and to forge relationships with affected communities.

Keywords

• Community engaged research
• stakeholder engagement
• health equity
• Asian Americans
• qualitative methods