Guideline for feedback of individual genetic research findings for genomics research in Africa
Janet Seeley,
Victoria Nembaware,
Alice Matimba,
Laura Rodríguez,
Aminu Yakubu,
Patricia Marshall,
Katherine Littler,
Paulina Tindana,
Stuart Ali,
Ebony Madden,
Sheryl McCurdy
Affiliations
Janet Seeley
6 Department of Global Health &Development, London School of Hygiene and Tropical Medicine, London, UK
Victoria Nembaware
Human Genetics Division, University of Cape Town, Cape Town, South Africa
Alice Matimba
Advanced Courses and Scientific Conferences, Wellcome Genome Campus, Cambridge, UK
Laura Rodríguez
Estudio Colaborativo Español de Malformaciones Congénitas del Centro de Investigación sobre Anomalías Congénitas, Instituto de Salud Carlos III, Ministerio de Sanidad y Consumo, Madrid, Spain
Aminu Yakubu
1National Health Research Ethics Committee, Federal Ministry of Health, Federal Secretariat, Abuja, Nigeria
Patricia Marshall
2Center for Genetic Research Ethics and Law Department of Bioethics, School of Medicine, Case Western Reserve University, Cleaveland, Ohio, USA
Katherine Littler
4Wellcome Trust, London, UK
Paulina Tindana
9Navrongo Health Research Centre, Ghana Health Service, Navrongo, Ghana
Stuart Ali
Akili Labs (Pty) Ltd, Johannesburg, South Africa
Ebony Madden
National Human Genome Research Institute, NIH, Bethesda, Maryland, USA
Sheryl McCurdy
Center for Health Promotion and Prevention Research, The University of Texas Health Science Center at Houston, Houston, Texas, USA
