Completeness and selection bias of a Belgian multidisciplinary, registration-based study on the EFFectiveness and quality of Endometrial Cancer Treatment (EFFECT)
Joren Vanbraband,
Nancy Van Damme,
Gauthier Bouche,
Geert Silversmit,
Anke De Geyndt,
Eric de Jonge,
Gerd Jacomen,
Frédéric Goffin,
Hannelore Denys,
Frédéric Amant
Affiliations
Joren Vanbraband
Biomedical Sciences Group, Department of Oncology, Unit of Gynecological Oncology, KU Leuven
Nancy Van Damme
Belgian Cancer Registry
Gauthier Bouche
The Anticancer Fund
Geert Silversmit
Belgian Cancer Registry
Anke De Geyndt
Belgian Cancer Registry
Eric de Jonge
Department of Obstetrics and Gynecology, Ziekenhuis Oost-Limburg, Campus Sint-Jan
Gerd Jacomen
Laboratory of Pathological Anatomy, AZ Sint-Maarten
Frédéric Goffin
Department of Obstetrics and Gynecology, CHR de La Citadelle
Hannelore Denys
Department of Medical Oncology, University Hospital Ghent
Frédéric Amant
Biomedical Sciences Group, Department of Oncology, Unit of Gynecological Oncology, KU Leuven
Highlights • This study highlights the feasibility of voluntarily collecting detailed information on the real-world clinical care offered to cancer patients, from diagnosis to follow-up. • The advantage of this approach is that it enables a more detailed assessment of clinical practice. • The disadvantage of this approach is that data is at risk of being somewhat incomplete and biased.