Long-term services and support for older individuals with intellectual and developmental disabilities in Africa: a systematic review

Abstract

This systematic review explores Long-Term Services and Support (LTSS) for older individuals with Intellectual and Developmental Disabilities (IDD) in Africa. Guided by the research question, what is the current state of LTSS for older individuals with IDD in Africa? The Preferred Reporting Items for Systematic Reviews, Meta-Analyses approach and a comprehensive multidisciplinary approach were adopted to analyze various aspects of LTSS, including types, accessibility, affordability, impact on families and caregivers, social inclusion and cultural influences. A systematic search of relevant literature sources was conducted, and data were synthesized to provide a holistic view of the challenges and opportunities in this field. The review reveals a significant gap in indigenous research and emphasizes the need to recognize the unique needs of older adults with IDD in Africa. Challenges related to accessibility, affordability and social inclusion persist, while cultural factors play vital roles in shaping the provision of LTSS. Family caregivers face increasing demands, leading to stress and psychological burden. These findings call for urgent attention to the provision of LTSS for older individuals with IDD in Africa. By addressing the identified challenges and promoting culturally sensitive and inclusive services, policymakers can enhance the well-being and social inclusion of this vulnerable population.

Keywords

• Long-term care
• support
• intellectual and developmental disabilities
• developmental disabilities
• Africa
• Joe Thomas, Institute of Health and Management, Australia