Struggling to be seen and understood as a person – Chronic back pain patients’ experiences of encounters in health care: An interview study

Abstract

Abstract Aim The aim of this study was to describe how patients with chronic back pain experience encounters with health care. Persons with chronic back pain are a stigmatized group often treated based on stereotypes, which may lead to misunderstandings and create frustrated patients and healthcare personnel. Few studies have examined the generic aspects of quality of care in this context. Design A descriptive design with a qualitative approach was used. Methods Nine individual interviews were conducted with chronic back pain patients after admission to an orthopaedic hospital ward. Data were analysed using content analysis. Results The patients’ experiences of healthcare encounters can be described by the theme “Struggling to be seen and understood as a person,” comprising the categories “Lack of access and trust to care,” “A desire to be taken care of and listened to” and “Own strength to handle healthcare situations.”

Keywords

• chronic back pain
• experiences
• patient–provider relationship
• person‐centred care