Letters in High Energy Physics (Feb 2024)
Bioethical Mediators: The Role of Medical Nurses in Navigating Genomic Ethics.
Abstract
The integration of genomics into modern medicine has revolutionized healthcare, offering unprecedented opportunities for personalized treatment and disease prevention. However, these advancements bring forth complex ethical challenges, including privacy concerns, informed consent, equitable access, and the psychosocial implications of genetic information. Medical nurses, as patient.centered caregivers, educators, and ethical mediators, play a pivotal role in addressing these challenges. Positioned at the intersection of clinical practice and patient advocacy, nurses are uniquely equipped to navigate the ethical landscape of genomic medicine. This article explores the evolving role of nurses in genomic ethics, emphasizing their contribution to fostering informed decision.making, ensuring confidentiality of genomic data, and promoting equitable access to genetic services. By providing psychosocial support, advocating for culturally sensitive care, and collaborating in interdisciplinary teams, nurses bridge the gap between scientific advancements and ethical considerations. We highlight key ethical dilemmas in genomic medicine, including the disclosure of incidental findings, managing familial implications of genetic data, and addressing disparities in access to genetic testing. Through case studies, we illustrate the practical challenges nurses face and the strategies they employ to resolve them. The article advocates for specialized bioethical training and robust institutional support to empower nurses in their role as bioethical mediators. By enhancing their genomic literacy and ethical acumen, nurses can ensure that the benefits of genomic medicine are realized within a framework of ethical integrity, patient autonomy, and equity. Ultimately, the involvement of nurses in navigating genomic ethics is indispensable to achieving a holistic, patient.centered approach to personalized healthcare.