Reasons for not reaching or using web-based self-management applications, and the use and evaluation of Oncokompas among cancer survivors, in the context of a randomised controlled trial

A. van der Hout; C.F. van Uden-Kraan; K. Holtmaat; F. Jansen; B.I. Lissenberg-Witte; G.A.P. Nieuwenhuijzen; J.A. Hardillo; R.J. Baatenburg de Jong; N.L. Tiren-Verbeet; D.W. Sommeijer; K. de Heer; C.G. Schaar; R.J.E. Sedee; K. Bosscha; M.W.M. van den Brekel; J.F. Petersen; M. Westerman; J. Honings; R.P. Takes; I. Houtenbos; W.T. van den Broek; R. de Bree; P. Jansen; S.E.J. Eerenstein; C.R. Leemans; J.M. Zijlstra; P. Cuijpers; L.V. van de Poll-Franse; I.M. Verdonck-de Leeuw

Internet Interventions (Sep 2021)

Reasons for not reaching or using web-based self-management applications, and the use and evaluation of Oncokompas among cancer survivors, in the context of a randomised controlled trial

A. van der Hout,
C.F. van Uden-Kraan,
K. Holtmaat,
F. Jansen,
B.I. Lissenberg-Witte,
G.A.P. Nieuwenhuijzen,
J.A. Hardillo,
R.J. Baatenburg de Jong,
N.L. Tiren-Verbeet,
D.W. Sommeijer,
K. de Heer,
C.G. Schaar,
R.J.E. Sedee,
K. Bosscha,
M.W.M. van den Brekel,
J.F. Petersen,
M. Westerman,
J. Honings,
R.P. Takes,
I. Houtenbos,
W.T. van den Broek,
R. de Bree,
P. Jansen,
S.E.J. Eerenstein,
C.R. Leemans,
J.M. Zijlstra,
P. Cuijpers,
L.V. van de Poll-Franse,
I.M. Verdonck-de Leeuw

Affiliations

A. van der Hout: Department of Clinical, Neuro- and Developmental Psychology, Amsterdam Public Health Research Institute, Vrije Universiteit Amsterdam, the Netherlands; Cancer Center Amsterdam (CCA), Amsterdam UMC, Amsterdam, the Netherlands
C.F. van Uden-Kraan: Department of Clinical, Neuro- and Developmental Psychology, Amsterdam Public Health Research Institute, Vrije Universiteit Amsterdam, the Netherlands; Cancer Center Amsterdam (CCA), Amsterdam UMC, Amsterdam, the Netherlands
K. Holtmaat: Department of Clinical, Neuro- and Developmental Psychology, Amsterdam Public Health Research Institute, Vrije Universiteit Amsterdam, the Netherlands; Cancer Center Amsterdam (CCA), Amsterdam UMC, Amsterdam, the Netherlands
F. Jansen: Cancer Center Amsterdam (CCA), Amsterdam UMC, Amsterdam, the Netherlands; Amsterdam UMC, Vrije Universiteit Amsterdam, Department of Otolaryngology – Head and Neck Surgery, Amsterdam, the Netherlands
B.I. Lissenberg-Witte: Amsterdam UMC, Vrije Universiteit Amsterdam, Department of Epidemiology and Data Science, Amsterdam, the Netherlands
G.A.P. Nieuwenhuijzen: Department of Surgery, Catharina Hospital, Eindhoven, the Netherlands
J.A. Hardillo: Department of Otolaryngology and Head and Neck Surgery, Erasmus MC Cancer Centre, Erasmus Medical Center, Rotterdam, the Netherlands
R.J. Baatenburg de Jong: Department of Otolaryngology and Head and Neck Surgery, Erasmus MC Cancer Centre, Erasmus Medical Center, Rotterdam, the Netherlands
N.L. Tiren-Verbeet: Department of Hematology, Erasmus Medical Center, Rotterdam, the Netherlands
D.W. Sommeijer: Department of Internal Medicine, Flevoziekenhuis, Almere, the Netherlands; Amsterdam UMC, University of Amsterdam, Department of Medical Oncology, Amsterdam, the Netherlands
K. de Heer: Department of Internal Medicine, Flevoziekenhuis, Almere, the Netherlands; Amsterdam UMC, University of Amsterdam, Department of Hematology, Amsterdam, the Netherlands
C.G. Schaar: Department of Internal Medicine, Gelre ziekenhuis, Apeldoorn, the Netherlands
R.J.E. Sedee: Department of Otolaryngology, Head and Neck Surgery, Haaglanden MC, The Hague, the Netherlands
K. Bosscha: Department of Surgery, Jeroen Bosch Ziekenhuis, Den Bosch, the Netherlands
M.W.M. van den Brekel: Department of Head and Neck Surgery, Netherlands Cancer Institute, Amsterdam, the Netherlands
J.F. Petersen: Department of Head and Neck Surgery, Netherlands Cancer Institute, Amsterdam, the Netherlands
M. Westerman: Department of Hematology, Northwest Clinics, Alkmaar, the Netherlands
J. Honings: Department of Otorhinolaryngology – Head and Neck Surgery, Radboud University Medical Center, Nijmegen, the Netherlands
R.P. Takes: Department of Otorhinolaryngology – Head and Neck Surgery, Radboud University Medical Center, Nijmegen, the Netherlands
I. Houtenbos: Department of Hematology, Spaarne Gasthuis, Hoofddorp, the Netherlands
W.T. van den Broek: Department of Surgery, St. Anna Hospital, Geldrop, the Netherlands
R. de Bree: Department of Head and Neck Surgical Oncology, Utrecht University Medical Center, Utrecht, the Netherlands
P. Jansen: Department of Surgery, Elisabeth-TweeSteden Hospital, Tilburg, the Netherlands
S.E.J. Eerenstein: Cancer Center Amsterdam (CCA), Amsterdam UMC, Amsterdam, the Netherlands; Amsterdam UMC, Vrije Universiteit Amsterdam, Department of Otolaryngology – Head and Neck Surgery, Amsterdam, the Netherlands
C.R. Leemans: Amsterdam UMC, Vrije Universiteit Amsterdam, Department of Otolaryngology – Head and Neck Surgery, Amsterdam, the Netherlands
J.M. Zijlstra: Cancer Center Amsterdam (CCA), Amsterdam UMC, Amsterdam, the Netherlands; Amsterdam UMC, Vrije Universiteit Amsterdam, Department of Hematology, Amsterdam, the Netherlands
P. Cuijpers: Department of Clinical, Neuro- and Developmental Psychology, Amsterdam Public Health Research Institute, Vrije Universiteit Amsterdam, the Netherlands
L.V. van de Poll-Franse: Department of Research, Netherlands Comprehensive Cancer Organisation, Eindhoven, the Netherlands; Division of Psychosocial Research & Epidemiology, The Netherlands Cancer Institute, the Netherlands; CoRPS - Center of Research on Psychological and Somatic Disorders, Department of Medical and Clinical Psychology, Tilburg University, Tilburg, the Netherlands
I.M. Verdonck-de Leeuw: Department of Clinical, Neuro- and Developmental Psychology, Amsterdam Public Health Research Institute, Vrije Universiteit Amsterdam, the Netherlands; Cancer Center Amsterdam (CCA), Amsterdam UMC, Amsterdam, the Netherlands; Amsterdam UMC, Vrije Universiteit Amsterdam, Department of Otolaryngology – Head and Neck Surgery, Amsterdam, the Netherlands; Corresponding author at: Van der Boechorststraat 7, 1081 BT Amsterdam, the Netherlands.

Journal volume & issue: Vol. 25
p. 100429

Abstract

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Introduction: The web-based self-management application Oncokompas was developed to support cancer survivors to monitor health-related quality of life and symptoms (Measure) and to provide tailored information (Learn) and supportive care options (Act). In a previously reported randomised controlled trial (RCT), 68% of 655 recruited survivors were eligible, and of those 45% participated in the RCT. Among participants of the RCT that were randomised to the intervention group, 52% used Oncokompas as intended. The aim of this study was to explore reasons for not participating in the RCT, and reasons for not using Oncokompas among non-users, and the use and evaluation of Oncokompas among users. Methods: Reasons for not participating were assessed with a study-specific questionnaire among 243 survivors who declined participation. Usage was investigated among 320 participants randomised to the intervention group of the RCT via system data and a study-specific questionnaire that was assessed during the 1 week follow-up (T1) assessment. Results: Main reasons for not participating were not interested in participation in scientific research (40%) and not interested in scientific research and Oncokompas (28%). Main reasons for not being interested in Oncokompas were wanting to leave the period of being ill behind (29%), no symptom burden (23%), or lacking internet skills (18%). Out of the 320 participants in the intervention group 167 (52%) used Oncokompas as intended. Among 72 non-users, main reasons for not using Oncokompas were no symptom burden (32%) or lack of time (26%). Among 248 survivors that activated their account, satisfaction and user-friendliness were rated with a 7 (scale 0–10). Within 3 (IQR 1–4) sessions, users selected 32 (IQR 6–37) topics. Main reasons for not using healthcare options in Act were that the information in Learn was already sufficient (44%) or no supportive care needs (32%). Discussion: Main reasons for not reaching or using Oncokompas were no symptom burden, no supportive care needs, or lack of time. Users selected many cancer-generic and tumour-specific topics to address, indicating added value of the wide range of available topics.

Published in Internet Interventions

ISSN: 2214-7829 (Online)
Publisher: Elsevier
Country of publisher: Netherlands
LCC subjects: Technology: Technology (General): Industrial engineering. Management engineering: Information technology; Philosophy. Psychology. Religion: Psychology
Website: http://www.journals.elsevier.com/internet-interventions/

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