Outcomes identified and prioritised by consumers of Partners in Recovery: a consumer-led study

Abstract

Abstract Background Recovery oriented service provisions means focusing on outcomes that are important to consumers themselves rather than to clinicians or services. Partners in Recovery (PIR) is an Australia-wide initiative designed to provide service coordination and brokerage for individuals with severe and persistent mental illness. One PIR service engaged a consumer-led research team to evaluate the service from the perspective of consumers. This consumer-led study was established to explore PIR consumers’ perceptions of outcomes they achieved through their involvement with PIR. Methods Data were collected through semi-structured interviews exploring participants’ views about and experiences with PIR. Data analysis occurred simultaneously with data collection using constant comparative analysis. Results Twenty consumers participated. They reported experiencing valued outcomes in six domains: feeling supported; feeling more hopeful and positive about the future; improved mental clarity, focus and order in life; getting out of the house and engaging in positive activity; having a better social life; and improved physical health. Conclusions Exploring outcomes achieved by PIR consumers, from their own perspective provides a nuanced understanding of the contribution these programs can have in supporting individuals’ recovery. Findings from this study highlight the kinds of outcomes consumers achieve when engaged with service coordination and brokerage services. Findings also suggest that outcome measures used in these types of services should focus on recovery outcomes as well as met and unmet needs.

Keywords

• Consumer-led research
• Service-user led research
• Recovery
• Service coordination
• Brokerage
• Severe and persistent mental illness