BMC Proceedings (Mar 2018)

Proceedings of the 2nd BEAT-PCD conference and 3rd PCD training school: part 1

  • Florian Halbeisen,
  • Claire Hogg,
  • Mikkel C. Alanin,
  • Zuzanna Bukowy-Bieryllo,
  • Francisco Dasi,
  • Julie Duncan,
  • Amanda Friend,
  • Myrofora Goutaki,
  • Claire Jackson,
  • Victoria Keenan,
  • Amanda Harris,
  • Robert A. Hirst,
  • Philipp Latzin,
  • Gemma Marsh,
  • Kim Nielsen,
  • Dominic Norris,
  • Daniel Pellicer,
  • Ana Reula,
  • Bruna Rubbo,
  • Nisreen Rumman,
  • Amelia Shoemark,
  • Woolf T. Walker,
  • Claudia E. Kuehni,
  • Jane S. Lucas

DOI
https://doi.org/10.1186/s12919-018-0098-9
Journal volume & issue
Vol. 12, no. S2
pp. 1 – 17

Abstract

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Abstract Primary ciliary dyskinesia (PCD) is a rare heterogenous condition that causes progressive suppurative lung disease, chronic rhinosinusitis, chronic otitis media, infertility and abnormal situs. ‘Better Experimental Approaches to Treat Primary Ciliary Dyskinesia’ (BEAT-PCD) is a network of scientists and clinicians coordinating research from basic science through to clinical care with the intention of developing treatments and diagnostics that lead to improved long-term outcomes for patients. BEAT-PCD activities are supported by EU funded COST Action (BM1407). The second BEAT-PCD conference, and third PCD training school were held jointly in April 2017 in Valencia, Spain. Presentations and workshops focussed on advancing the knowledge and skills relating to PCD in: basic science, epidemiology, diagnostic testing, clinical management and clinical trials. The multidisciplinary conference provided an interactive platform for exchanging ideas through a program of lectures, poster presentations, breakout sessions and workshops. Three working groups met to plan consensus statements. Progress with BEAT-PCD projects was shared and new collaborations were fostered. In this report, we summarize the meeting, highlighting developments made during the meeting.