SAGE Open Nursing (Apr 2019)

Informal Caregiving in a Medically Underserved Community: Challenges, Construction of Meaning, and the Caregiver–Recipient Dyad

  • Rita Gorawara-Bhat PhD,
  • Jeffrey Graupner MPH,
  • Jason Molony AM,
  • Katherine Thompson MD

DOI
https://doi.org/10.1177/2377960819844670
Journal volume & issue
Vol. 5

Abstract

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Little is known about informal caregivers' challenges in medically underserved communities. This qualitative study explores their perceptions/experiences of caregiving in a medically underserved community in Midwest United States. Two focus groups ( n = 12) were conducted and themes were extracted and analyzed. Theme 1 included perceived barriers/unmet needs; most prevalent of which were lack of informational resources and support groups. A second unsolicited and unanticipated theme highlighted how caregivers constructed meaning through reappraising challenges to create enriching experiences for themselves, reinforcing their evolving dyadic relationship with care-recipient. Challenging and enriching aspects of caregiving coexisted and were rooted in caregiver–care-recipient dyad. Caregivers used meaning-making as a coping strategy for challenges. Prior research corroborates caregivers' challenges and meaning-making; this study contributes by delineating how both become interrelated. Policy makers can (a) alleviate challenges by increasing informational resources and support groups and (b) provide training to optimize caregivers' meaning-making, thus enhancing their positive experiences.