Clinical and Translational Allergy (Mar 2019)
Guidance to 2018 good practice: ARIA digitally-enabled, integrated, person-centred care for rhinitis and asthma
- J. Bousquet,
- A. Bedbrook,
- W. Czarlewski,
- G. L. Onorato,
- S. Arnavielhe,
- D. Laune,
- E. Mathieu-Dupas,
- J. Fonseca,
- E. Costa,
- O. Lourenço,
- M. Morais-Almeida,
- A. Todo-Bom,
- M. Illario,
- E. Menditto,
- G. W. Canonica,
- L. Cecchi,
- R. Monti,
- L. Napoli,
- M. T. Ventura,
- G. De Feo,
- W. J. Fokkens,
- N. H. Chavannes,
- S. Reitsma,
- A. A. Cruz,
- J. da Silva,
- F. S. Serpa,
- D. Larenas-Linnemann,
- J. M. Fuentes Perez,
- Y. R. Huerta-Villalobos,
- D. Rivero-Yeverino,
- E. Rodriguez-Zagal,
- A. Valiulis,
- R. Dubakiene,
- R. Emuzyte,
- V. Kvedariene,
- I. Annesi-Maesano,
- H. Blain,
- P. Bonniaud,
- I. Bosse,
- Y. Dauvilliers,
- P. Devillier,
- J. F. Fontaine,
- J. L. Pépin,
- N. Pham-Thi,
- F. Portejoie,
- R. Picard,
- N. Roche,
- C. Rolland,
- P. Schmidt-Grendelmeier,
- P. Kuna,
- B. Samolinski,
- J. M. Anto,
- V. Cardona,
- J. Mullol,
- H. Pinnock,
- D. Ryan,
- A. Sheikh,
- S. Walker,
- S. Williams,
- S. Becker,
- L. Klimek,
- O. Pfaar,
- K. C. Bergmann,
- R. Mösges,
- T. Zuberbier,
- R. E. Roller-Wirnsberger,
- P. V. Tomazic,
- T. Haahtela,
- J. Salimäki,
- S. Toppila-Salmi,
- E. Valovirta,
- T. Vasankari,
- B. Gemicioğlu,
- A. Yorgancioglu,
- N. G. Papadopoulos,
- E. P. Prokopakis,
- I. G. Tsiligianni,
- S. Bosnic-Anticevich,
- R. O’Hehir,
- J. C. Ivancevich,
- H. Neffen,
- M. E. Zernotti,
- I. Kull,
- E. Melén,
- M. Wickman,
- C. Bachert,
- P. W. Hellings,
- G. Brusselle,
- S. Palkonen,
- C. Bindslev-Jensen,
- E. Eller,
- S. Waserman,
- L. P. Boulet,
- J. Bouchard,
- D. K. Chu,
- H. J. Schünemann,
- M. Sova,
- G. De Vries,
- M. van Eerd,
- I. Agache,
- I. J. Ansotegui,
- M. Bewick,
- T. Casale,
- M. Dykewick,
- M. Ebisawa,
- R. Murray,
- R. Naclerio,
- Y. Okamoto,
- D. V. Wallace,
- The MASK study group
Affiliations
- J. Bousquet
- MACVIA-France, Fondation Partenariale FMC VIA-LR, CHU Arnaud de Villeneuve
- A. Bedbrook
- MACVIA-France, Fondation Partenariale FMC VIA-LR, CHU Arnaud de Villeneuve
- W. Czarlewski
- Medical Consulting Czarlewski
- G. L. Onorato
- MACVIA-France, Fondation Partenariale FMC VIA-LR, CHU Arnaud de Villeneuve
- S. Arnavielhe
- KYomed INNOV
- D. Laune
- KYomed INNOV
- E. Mathieu-Dupas
- KYomed INNOV
- J. Fonseca
- Center for Research in Health Technology and Information Systems, Faculdade de Medicina da Universidade do Porto, Medida
- E. Costa
- UCIBIO, REQUINTE, Faculty of Pharmacy and Competence Center on Active and Healthy Ageing, University of Porto (Porto4Ageing)
- O. Lourenço
- Faculty of Health Sciences and CICS – UBI, Health Sciences Research Centre, University of Beira Interior
- M. Morais-Almeida
- Allergy Center, CUF Descobertas Hospital
- A. Todo-Bom
- Imunoalergologia, Centro Hospitalar Universitário de Coimbra and Faculty of Medicine, University of Coimbra
- M. Illario
- Division for Health Innovation, Campania Region and Federico II University Hospital Naples (R&D and DISMET)
- E. Menditto
- CIRFF, Federico II University
- G. W. Canonica
- Personalized Medicine Clinic Asthma and Allergy, Humanitas Research Hospital, Humanitas University
- L. Cecchi
- SOS Allergology and Clinical Immunology, USL Toscana Centro
- R. Monti
- Department of Medical Sciences, Allergy and Clinical Immunology Unit, University of Torino & Mauriziano Hospital
- L. Napoli
- Consortium of Pharmacies and Services COSAFER
- M. T. Ventura
- Unit of Geriatric Immunoallergology, University of Bari Medical School
- G. De Feo
- Department of Medicine, Surgery and Dentistry “Scuola Medica Salernitana”, University of Salerno
- W. J. Fokkens
- Department of Otorhinolaryngology, Amsterdam University Medical Centre (AMC)
- N. H. Chavannes
- Department of Public Health and Primary Care, Leiden University Medical Center
- S. Reitsma
- Department of Otorhinolaryngology, Amsterdam University Medical Centre (AMC)
- A. A. Cruz
- ProAR – Nucleo de Excelencia em Asma, Federal University of Bahia
- J. da Silva
- WHO GARD Planning Group
- F. S. Serpa
- Department of Internal Medicine and Allergic Clinic of Professor Polydoro Ernani de Sao, Thiago University Hospital, Federal University of Santa Catarina (UFSC)
- D. Larenas-Linnemann
- Center of Excellence in Asthma and Allergy, Médica Sur Clinical Foundation and Hospital
- J. M. Fuentes Perez
- Hospital General Regional 1 “Dr Carlos Mc Gregor Sanchez Navarro” IMSS
- Y. R. Huerta-Villalobos
- Hospital General Regional 1 “Dr Carlos Mc Gregor Sanchez Navarro” IMSS
- D. Rivero-Yeverino
- Allergist
- E. Rodriguez-Zagal
- Allergist
- A. Valiulis
- Clinic of Children’s Diseases, and Institute of Health Sciences Department of Public Health, Vilnius University Institute of Clinical Medicine
- R. Dubakiene
- Clinic of Infectious, Chest Diseases, Dermatology and Allergology, Vilnius University
- R. Emuzyte
- Clinic of Children’s Diseases, Faculty of Medicine, Vilnius University
- V. Kvedariene
- Faculty of Medicine, Vilnius University
- I. Annesi-Maesano
- Epidemiology of Allergic and Respiratory Diseases, Department Institute Pierre Louis of Epidemiology and Public Health, INSERM, Sorbonne Université, Medical School Saint Antoine
- H. Blain
- Department of Geriatrics, Montpellier University Hospital
- P. Bonniaud
- CHU Dijon
- I. Bosse
- Allergist
- Y. Dauvilliers
- Sleep Unit, Department of Neurology, Hôpital Gui-de-Chauliac Montpellier
- P. Devillier
- UPRES EA220, Pôle des Maladies des Voies Respiratoires, Hôpital Foch, Université Paris-Saclay
- J. F. Fontaine
- Allergist
- J. L. Pépin
- Laboratoire HP2, Grenoble, INSERM, U1042, Université Grenoble Alpes
- N. Pham-Thi
- Allergy Department, Pasteur Institute
- F. Portejoie
- MACVIA-France, Fondation Partenariale FMC VIA-LR, CHU Arnaud de Villeneuve
- R. Picard
- Conseil Général de l’Economie Ministère de l’Economie, de l’Industrie et du Numérique
- N. Roche
- Pneumologie et Soins Intensifs Respiratoires, Hôpitaux Universitaires Paris, Centre Hôpital Cochin
- C. Rolland
- Association Asthme et Allergie
- P. Schmidt-Grendelmeier
- Allergy Unit, Department of Dermatology, University Hospital of Zurich
- P. Kuna
- Division of Internal Medicine, Asthma and Allergy, Barlicki University Hospital, Medical University of Lodz
- B. Samolinski
- Department of Prevention of Envinronmental Hazards and Allergology, Medical University of Warsaw
- J. M. Anto
- ISGlobAL, Centre for Research in Environmental Epidemiology (CREAL)
- V. Cardona
- Allergy Section, Department of Internal Medicine, Hospital Vall ‘dHebron & ARADyAL Research Network
- J. Mullol
- Rhinology Unit and Smell Clinic, ENT Department, Hospital Clínic, University of Barcelona
- H. Pinnock
- Asthma UK Centre for Applied Research, The Usher Institute of Population Health Sciences and Informatics, The University of Edinburgh
- D. Ryan
- Honorary Clinical Research Fellow, Allergy and Respiratory Research Group, Usher Institute of Population Health Sciences and Informatics, Medical School, University of Edinburgh
- A. Sheikh
- The Usher Institute of Population Health Sciences and Informatics, The University of Edinburgh
- S. Walker
- Asthma UK
- S. Williams
- International Primary Care Respiratory Group IPCRG
- S. Becker
- Department of Otolaryngology, Head and Neck Surgery, University of Mainz
- L. Klimek
- Center for Rhinology and Allergology
- O. Pfaar
- Department of Otorhinolaryngology, Head and Neck Surgery, Section of Rhinology and Allergy, University Hospital Marburg, Phillipps-Universität Marburg
- K. C. Bergmann
- Corporate Member of Freie Universität Berlin, Humboldt-Uniersität zu Berlin, Charité - Universitätsmedizin Berlin
- R. Mösges
- Institute of Medical Statistics, and Computational Biology, Medical Faculty, University of Cologne
- T. Zuberbier
- Corporate Member of Freie Universität Berlin, Humboldt-Uniersität zu Berlin, Charité - Universitätsmedizin Berlin
- R. E. Roller-Wirnsberger
- Department of Internal Medicine, Medical University of Graz
- P. V. Tomazic
- Department of ENT, Medical University of Graz
- T. Haahtela
- Skin and Allergy Hospital, Helsinki University Hospital, University of Helsinki
- J. Salimäki
- Association of Finnish Pharmacies
- S. Toppila-Salmi
- Skin and Allergy Hospital, Helsinki University Hospital, University of Helsinki
- E. Valovirta
- Department of Lung Diseases and Clinical Immunology, Terveystalo Allergy Clinic, University of Turku
- T. Vasankari
- FILHA, Finnish Lung Association
- B. Gemicioğlu
- Department of Pulmonary Diseases, Cerrahpasa Faculty of Medicine, Istanbul University-Cerrahpasa
- A. Yorgancioglu
- Department of Pulmonary Diseases, Faculty of Medicine, Celal Bayar University
- N. G. Papadopoulos
- Division of Infection, Immunity and Respiratory Medicine, Royal Manchester Children’s Hospital, University of Manchester
- E. P. Prokopakis
- Department of Otorhinolaryngology, University of Crete School of Medicine
- I. G. Tsiligianni
- The Usher Institute of Population Health Sciences and Informatics, The University of Edinburgh
- S. Bosnic-Anticevich
- University of Sydney and Woolcock Emphysema Centre and Local Health District, Woolcock Institute of Medical Research
- R. O’Hehir
- Department of Allergy, Immunology and Respiratory Medicine, Alfred Hospital and Central Clinical School, Monash University
- J. C. Ivancevich
- Servicio de Alergia e Immunologia, Clinica Santa Isabel
- H. Neffen
- Director of Center of Allergy, Immunology and Respiratory Diseases, Santa Fe, Argentina Center for Allergy and Immunology
- M. E. Zernotti
- Universidad Católica de Córdoba
- I. Kull
- Department of Clinical Science and Education, Södersjukhuset, Karolinska Institutet
- E. Melén
- Sachs’ Children and Youth Hospital, Södersjukhuset, Stockholm and Institute of Environmental Medicine, Karolinska Institutet
- M. Wickman
- Centre for Clinical Research Sörmland, Uppsala University
- C. Bachert
- Upper Airways Research Laboratory, ENT Dept, Ghent University Hospital
- P. W. Hellings
- Euforea
- G. Brusselle
- Department of Respiratory Medicine, Ghent University Hospital
- S. Palkonen
- EFA European Federation of Allergy and Airways Diseases Patients’ Associations
- C. Bindslev-Jensen
- Department of Dermatology and Allergy Centre, Odense University Hospital, Odense Research Center for Anaphylaxis (ORCA)
- E. Eller
- Department of Dermatology and Allergy Centre, Odense University Hospital, Odense Research Center for Anaphylaxis (ORCA)
- S. Waserman
- Department of Medicine, Clinical Immunology and Allergy, McMaster University
- L. P. Boulet
- Quebec Heart and Lung Institute, Laval University
- J. Bouchard
- Clinical Medecine, Laval’s University
- D. K. Chu
- Medecine Department, Hôpital de la Malbaie
- H. J. Schünemann
- Medecine Department, Hôpital de la Malbaie
- M. Sova
- Department of Health Research Methods, Evidence and Impact, Division of Immunology and Allergy, McMaster University
- G. De Vries
- Department of Respiratory Medicine, University Hospital Olomouc
- M. van Eerd
- Department of Respiratory Medicine, University Hospital Olomouc
- I. Agache
- Faculty of Medicine, Transylvania University
- I. J. Ansotegui
- Department of Allergy and Immunology, Hospital Quirón Bizkaia
- M. Bewick
- iQ4U Consultants Ltd
- T. Casale
- Division of Allergy/Immunology, University of South Florida
- M. Dykewick
- Section of Allergy and Immunology, Saint Louis University School of Medicine
- M. Ebisawa
- Clinical Reserch Center for Allergy and Rheumatology, Sagamihara National Hospital
- R. Murray
- Medical Communications Consultant, MedScript Ltd (Ireland & New Zealand)
- R. Naclerio
- Johns Hopkins School of Medicine
- Y. Okamoto
- Department of Otorhinolaryngology, Chiba University Hospital
- D. V. Wallace
- Nova Southeastern University
- The MASK study group
- DOI
- https://doi.org/10.1186/s13601-019-0252-0
- Journal volume & issue
-
Vol. 9,
no. 1
pp. 1 – 19
Abstract
Abstract Aims Mobile Airways Sentinel NetworK (MASK) belongs to the Fondation Partenariale MACVIA-LR of Montpellier, France and aims to provide an active and healthy life to rhinitis sufferers and to those with asthma multimorbidity across the life cycle, whatever their gender or socio-economic status, in order to reduce health and social inequities incurred by the disease and to improve the digital transformation of health and care. The ultimate goal is to change the management strategy in chronic diseases. Methods MASK implements ICT technologies for individualized and predictive medicine to develop novel care pathways by a multi-disciplinary group centred around the patients. Stakeholders Include patients, health care professionals (pharmacists and physicians), authorities, patient’s associations, private and public sectors. Results MASK is deployed in 23 countries and 17 languages. 26,000 users have registered. EU grants (2018) MASK is participating in EU projects (POLLAR: impact of air POLLution in Asthma and Rhinitis, EIT Health, DigitalHealthEurope, Euriphi and Vigour). Lessons learnt (i) Adherence to treatment is the major problem of allergic disease, (ii) Self-management strategies should be considerably expanded (behavioural), (iii) Change management is essential in allergic diseases, (iv) Education strategies should be reconsidered using a patient-centred approach and (v) Lessons learnt for allergic diseases can be expanded to chronic diseases.
Keywords
