Frontiers in Medicine (Mar 2022)
Transfusional Approach in Multi-Ethnic Sickle Cell Patients: Real-World Practice Data From a Multicenter Survey in Italy
- Giovanna Graziadei,
- Lucia De Franceschi,
- Laura Sainati,
- Donatella Venturelli,
- Nicoletta Masera,
- Piero Bonomo,
- Aurora Vassanelli,
- Maddalena Casale,
- Gianluca Lodi,
- Vincenzo Voi,
- Paolo Rigano,
- Valeria Maria Pinto,
- Alessandra Quota,
- Lucia D. Notarangelo,
- Giovanna Russo,
- Massimo Allò,
- Rosamaria Rosso,
- Domenico D'Ascola,
- Elena Facchini,
- Silvia Macchi,
- Francesco Arcioni,
- Federico Bonetti,
- Enza Rossi,
- Antonella Sau,
- Saveria Campisi,
- Gloria Colarusso,
- Fiorina Giona,
- Roberto Lisi,
- Paola Giordano,
- Gianluca Boscarol,
- Aldo Filosa,
- Sarah Marktel,
- Paola Maroni,
- Mauro Murgia,
- Raffaella Origa,
- Filomena Longo,
- Marta Bortolotti,
- Raffaella Colombatti,
- Rosario Di Maggio,
- Raffaella Mariani,
- Alberto Piperno,
- Paola Corti,
- Carmelo Fidone,
- Giovanni Palazzi,
- Luca Badalamenti,
- Barbara Gianesin,
- Frédéric B. Piel,
- Gian Luca Forni
Affiliations
- Giovanna Graziadei
- Rare Diseases Center, General Medicine Unit, Fondazione IRCCS Ca' Granda Ospedale Maggiore Policlinico, Milan, Italy
- Lucia De Franceschi
- Department of Medicine, University of Verona and AOUI Verona, Verona, Italy
- Laura Sainati
- Dipartimento della Salute della Donna e del Bambino Azienda Ospedaliera, Azienda Ospedaliera Universitaria, Padova, Italy
- Donatella Venturelli
- Servizio Immunotrasfusionale, Azienda Ospedaliero Universitaria Modena, Modena, Italy
- Nicoletta Masera
- Pediatric Clinic Hemato-Oncology Department, University of Milano-Bicocca, MBBM Foundation, San Gerardo Hospital, Monza, Italy
- Piero Bonomo
- Servizio Immunotrasfusionale, Azienda Ospedaliera Maria Paternò Arezzo, Ragusa, Italy
- Aurora Vassanelli
- UOC Medicina Trasfusionale, Azienda Ospedaliera Universitaria, Verona, Italy
- Maddalena Casale
- Department of Women, Child and General and Specialized Surgery, University “Luigi Vanvitelli”, Naples, Italy
- Gianluca Lodi
- Medicina Trasfusionale, Azienda Ospedaliera Universitaria Sant'Anna, Ferrara, Italy
- Vincenzo Voi
- 0Centro per le Emoglobinopatie – Dipartimento di Scienze Cliniche e Biologiche, Università di Torino, Ospedale San Luigi Gonzaga, Torino, Italy
- Paolo Rigano
- 1Campus of Haematology Franco e Piera Cutino, A.O.O.R. “Villa Sofia-Cervello” di Palermo, Palermo, Italy
- Valeria Maria Pinto
- 2Hematology, Thalassemia and Congenital Anemia Center, Ospedale Galliera, Genova, Italy
- Alessandra Quota
- 3Unità Operativa Semplice Dipartimentale Talassemia P.O. Vittorio Emanuele, Gela, Italy
- Lucia D. Notarangelo
- 4Italian Association of Pediatric Hematology Oncology (AIEOP) Coagulation Disorders Working Group, Brescia, Italy
- Giovanna Russo
- 5Pediatric Hematology/Oncology Unit, Università di Catania, Catania, Italy
- Massimo Allò
- 6Servizio Microcitemia, Presidio Ospedaliero SL 5, Crotone, Italy
- Rosamaria Rosso
- 7UOSD di Talassemia ed Emoglobinopatie, Azienda Ospedaliero-Universitaria Policlinico San Marco, Catania, Italy
- Domenico D'Ascola
- 8Centro Microcitemie, Azienda Ospedaliera “Bianchi-Melacrino-Morelli”, Reggio Calabria, Italy
- Elena Facchini
- 9SSD Oncoematologia Pediatrica - Policlinico di S.Orsola, Bologna, Italy
- Silvia Macchi
- 0Servizio Trasfusionale, Ospedale Santa Maria delle Croci, Ravenna, Italy
- Francesco Arcioni
- 1Ospedale Santa Maria della Misericordia, Perugia, Italy
- Federico Bonetti
- 2Policlinico San Matteo di Pavia, Pavia, Italy
- Enza Rossi
- 3Unità Operativa Ematologia, Centro di Microcitemia, Azienda Ospedaliera di Cosenza, Presidio Ospedaliero “Annunziata” Cosenza, Cosenza, Italy
- Antonella Sau
- 4Ospedale Spirito Santo, Pescara, Italy
- Saveria Campisi
- 5Department of Talassemia, Siracusa Hospital, Siracusa, Italy
- Gloria Colarusso
- 6SOC Pediatria Nuovo Ospedale Prato Santo Stefano, Prato, Italy
- Fiorina Giona
- 7Hematology, Department of Translational and Precision Medicine, Sapienza University, Rome, Italy
- Roberto Lisi
- 8Unità Operativa Dipartimentale Talassemia, Presidio Garibaldi-Centro ARNAS Garibaldi, Catania, Italy
- Paola Giordano
- 9UOC Pediatria Universitaria, Università di Bari, Bari, Italy
- Gianluca Boscarol
- 0Ospedale di Bolzano, Bolzan, Italy
- Aldo Filosa
- 1UOSD Malattie rare del globulo rosso, AORN A. Cardarelli, Naples, Italy
- Sarah Marktel
- 2Hematology and Bone Marrow Transplant Unit, IRCCS San Raffaele Scientific Institute, Milan, Italy
- Paola Maroni
- 3Servizio di Immunoematologia e Medicina Trasfusionale, ASST Sette Laghi, Varese, Italy
- Mauro Murgia
- 4Centro Provinciale per le Microcitemia, Ospedale San Martino di Oristano, Oristano, Italy
- Raffaella Origa
- 5Ospedale Pediatrico Microcitemico, Università di Cagliari, Cagliari, Italy
- Filomena Longo
- 2Hematology, Thalassemia and Congenital Anemia Center, Ospedale Galliera, Genova, Italy
- Marta Bortolotti
- 6Department of Oncology and Oncohematology, University of Milan, Milan, Italy
- Raffaella Colombatti
- Dipartimento della Salute della Donna e del Bambino Azienda Ospedaliera, Azienda Ospedaliera Universitaria, Padova, Italy
- Rosario Di Maggio
- 3Unità Operativa Semplice Dipartimentale Talassemia P.O. Vittorio Emanuele, Gela, Italy
- Raffaella Mariani
- 7Rare Disease Centre - Hereditary anemias - ASST-Monza, S. Gerardo Hospital - University of Milano-Bicocca, Monza, Italy
- Alberto Piperno
- 7Rare Disease Centre - Hereditary anemias - ASST-Monza, S. Gerardo Hospital - University of Milano-Bicocca, Monza, Italy
- Paola Corti
- Pediatric Clinic Hemato-Oncology Department, University of Milano-Bicocca, MBBM Foundation, San Gerardo Hospital, Monza, Italy
- Carmelo Fidone
- Servizio Immunotrasfusionale, Azienda Ospedaliera Maria Paternò Arezzo, Ragusa, Italy
- Giovanni Palazzi
- Servizio Immunotrasfusionale, Azienda Ospedaliero Universitaria Modena, Modena, Italy
- Luca Badalamenti
- 8Biomedicina, Neuroscienze e Diagnostica avanzata, University of Palermo, Palermo, Italy
- Barbara Gianesin
- 9ForAnemia Foundation, Genoa, Italy
- Frédéric B. Piel
- 0Department of Epidemiology and Biostatistics, Imperial College London, London, United Kingdom
- Gian Luca Forni
- 4Italian Association of Pediatric Hematology Oncology (AIEOP) Coagulation Disorders Working Group, Brescia, Italy
- DOI
- https://doi.org/10.3389/fmed.2022.832154
- Journal volume & issue
-
Vol. 9
Abstract
Sickle cell disease (SCD) is a worldwide distributed hereditary red cell disorder characterized by recurrent acute vaso-occlusive crises (VOCs and anemia). Gold standard treatments are hydroxycarbamide (HC) and/or different red blood cell (RBC) transfusion regimens to limit disease progression. Here, we report a retrospective study on 1,579 SCD patients (median age 23 years; 802 males/777 females), referring to 34 comprehensive Italian centers for hemoglobinopathies. Although we observed a similar proportion of Caucasian (47.9%) and African (48.7%) patients, Italian SCD patients clustered into two distinct overall groups: children of African descent and adults of Caucasian descent. We found a subset of SCD patients requiring more intensive therapy with a combination of HC plus chronic transfusion regimen, due to partial failure of HC treatment alone in preventing or reducing sickle cell-related acute manifestations. Notably, we observed a higher use of acute transfusion approaches for SCD patients of African descent when compared to Caucasian subjects. This might be related to (i) age of starting HC treatment; (ii) patients' low social status; (iii) patients' limited access to family practitioners; or (iv) discrimination. In our cohort, alloimmunization was documented in 135 patients (8.5%) and was more common in Caucasians (10.3%) than in Africans (6.6%). Alloimmunization was similar in male and female and more frequent in adults than in children. Our study reinforces the importance of donor-recipient exact matching for ABO, Rhesus, and Kell antigen systems for RBC compatibility as a winning strategy to avoid or limit alloimmunization events that negatively impact the clinical management of SCD-related severe complications.Clinical Trial RegistrationClinicalTrials.gov, identifier: NCT03397017.
Keywords