Journal of Patient-Reported Outcomes (Nov 2021)

Development and equivalence of new faces for inclusion in the Childhood Asthma Control Test (C-ACT) response scale

  • Kate Sully,
  • Nicola Bonner,
  • Helena Bradley,
  • Robyn von Maltzahn,
  • Rob Arbuckle,
  • Louise Walker-Nthenda,
  • Aoife Mahon,
  • Brandon Becker,
  • Louise O’Hara,
  • Katherine B. Bevans,
  • Mark Kosinski,
  • Robert S. Zeiger,
  • Ross Mackenzie,
  • Linda Nelsen

DOI
https://doi.org/10.1186/s41687-021-00390-2
Journal volume & issue
Vol. 5, no. 1
pp. 1 – 16

Abstract

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Plain English summary Accurate monitoring of the symptoms associated with pediatric asthma is important when managing the condition. The CHILDHOOD ASTHMA CONTROL TEST (C-ACT) is a questionnaire widely used to measure asthma severity in young children (aged 4–11 years). Each question answered by the child in the C-ACT has four possible answer choices. To help children answer, each choice is presented alongside an image of a male child’s face ranging from sad to happy. However, there are concerns that the images used are not culturally universal and could be misinterpreted—due to difficulties translating to electronic formats and a lack of differentiation between the images used. Through interviewing children with asthma, we aimed to address these concerns by developing and testing new images. Alternative image options developed included simpler faces, circles of decreasing size and squares of decreasing quantity. Children aged 4–11 years old were interviewed to test whether they understood the response scale using the new images and if they answered in the same way as with the original images. Interviews were conducted in two stages, with expert guidance at key stages. Results showed that children can interpret and understand the newly developed images and that they answer the questions the same as they would using the original images. These new images have the advantages of being culturally neutral and easier to implement on an electronic device.

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