Patient Preference and Adherence (Oct 2024)
Maternal Perspectives on and Preferences for an Enhanced Neonatal Jaundice Education Program: An Evaluation Using the Consolidated Framework for Implementation Research
Abstract
Businge Alinaitwe,1,2 Faith Sharon Kisakye,3 Charles Kato,4 Francis Nkunzimaana,5 Elizabeth Ayebare,2 Jameel J Winter,6 Tom Denis Ngabirano2 1Uganda Cancer Institute, Regional Cancer Center, Gulu, Uganda; 2Department of Nursing, College of Health Sciences, Makerere University, Kampala, Uganda; 3Faculty of Health Sciences, Busitema University, Mbale, Uganda; 4School of Medicine, College of Health Sciences, Makerere University, Kampala, Uganda; 5Clinical Epidemiology Unit, School of Medicine, College of Health Sciences, Makerere University, Kampala, Uganda; 6Department of Neonatology, Children’s Minnesota, Minnesota, MN, USACorrespondence: Businge Alinaitwe, Email [email protected]: Neonatal mortality is a major contributor to under-five deaths yet the main causes of these deaths are preventable. Postnatal health education programs can improve timely detection and care seeking for newborn morbidities such as neonatal jaundice (NNJ). Being a common occurrence in low-income countries, it is surprising that women do not have sufficient knowledge about NNJ. Although the knowledge can be improved through routine education programs, healthcare providers rarely engage women in evaluating such programs, which limits their uptake and sustainability.Methods: This was a qualitative study evaluating a postnatal neonatal jaundice health education program conducted at Jinja Regional Referral Hospital (JRRH). Narrative data on the structure, design, and delivery of the program was recorded from 12 postnatal women through unstructured interviews. The participants were those who had taken part in an enhanced NNJ education program. Qualitative content analysis, guided by the Consolidated Framework for Implementation Research (CFIR) was performed.Results: Using the CFIR, two themes were identified; the intervention characteristics domain and the individual domains. The constructs under these domains were intervention design quality and packaging, relative advantage, and maternal knowledge needs. The augmented nature of the intervention, sorting individual needs, ability to promote continuity of care, and care-seeking were identified as key facilitators. Lack of group interaction was identified by some women as a possible barrier.Conclusion: Overall, the education program was positively perceived by women and preferred compared to the conventional method of health education. In low-resource settings where maternal health education can contribute to a reduction in newborn mortality, the design, implementation, and evaluation of maternal education programs should be informed by women’s preferences. Healthcare providers should utilize multiple sources of information and routinely practice patient-centered evaluation to meet the changing knowledge demands of postnatal women.Keywords: maternal health education, neonatal jaundice, enhanced neonatal jaundice education, postnatal education, maternal knowledge
