Patient-reported fatigue and pain in Erdheim-Chester disease: a registry-based, mixed methods study

• Anne S. Reiner,
• Dana Bossert,
• Justin J. Buthorn,
• Allison M. Sigler,
• Selin Gonen,
• Deanna Fournier,
• Kathleen Brewer,
• Jessica Corkran,
• Gaurav Goyal,
• Carl E. Allen,
• Kenneth L. McClain,
• Thomas M. Atkinson,
• Kathleen A. Lynch,
• Jun J. Mao,
• Katherine S. Panageas,
• Eli L. Diamond

Affiliations

Anne S. Reiner

Department of Epidemiology and Biostatistics; Memorial Sloan Kettering Cancer Center

Dana Bossert

Department of Neurology; Memorial Sloan Kettering Cancer Center

Justin J. Buthorn

Department of Neurology; Memorial Sloan Kettering Cancer Center

Allison M. Sigler

Department of Neurology; Memorial Sloan Kettering Cancer Center

Selin Gonen

Hunter College High School

Deanna Fournier

Histiocytosis Association, Pitman, NJ

Kathleen Brewer

Erdheim-Chester Disease Global Alliance, DeRidder, LA

Jessica Corkran

Erdheim-Chester Disease Global Alliance, DeRidder, LA

Gaurav Goyal

Division of Hematology-Oncology, University of Alabama at Birmingham, Birmingham, AL

Carl E. Allen

Texas Children's Cancer Center, Department of Pediatrics, Baylor College of Medicine, Houston, TX

Kenneth L. McClain

Texas Children's Cancer Center, Department of Pediatrics, Baylor College of Medicine, Houston, TX

Thomas M. Atkinson

Department of Psychiatry and Behavioral Sciences, Memorial Sloan Kettering Cancer Center

Kathleen A. Lynch

Department of Psychiatry and Behavioral Sciences, Memorial Sloan Kettering Cancer Center

Jun J. Mao

Department of Medicine, Memorial Sloan Kettering Cancer Center

Katherine S. Panageas

Department of Epidemiology and Biostatistics; Memorial Sloan Kettering Cancer Center

Eli L. Diamond

Department of Neurology; Memorial Sloan Kettering Cancer Center