FHIR-standardized data collection on the clinical rehabilitation pathway of trans-femoral amputation patients

Valerio Antonio Arcobelli; Serena Moscato; Pierpaolo Palumbo; Alberto Marfoglia; Filippo Nardini; Pericle Randi; Angelo Davalli; Antonella Carbonaro; Lorenzo Chiari; Sabato Mellone

doi:10.1038/s41597-024-03593-6

Scientific Data (Jul 2024)

FHIR-standardized data collection on the clinical rehabilitation pathway of trans-femoral amputation patients

Valerio Antonio Arcobelli,
Serena Moscato,
Pierpaolo Palumbo,
Alberto Marfoglia,
Filippo Nardini,
Pericle Randi,
Angelo Davalli,
Antonella Carbonaro,
Lorenzo Chiari,
Sabato Mellone

Affiliations

Valerio Antonio Arcobelli: Department of Electrical, Electronic and Information Engineering “Guglielmo Marconi” – DEI, University of Bologna
Serena Moscato: Department of Electrical, Electronic and Information Engineering “Guglielmo Marconi” – DEI, University of Bologna
Pierpaolo Palumbo: Department of Electrical, Electronic and Information Engineering “Guglielmo Marconi” – DEI, University of Bologna
Alberto Marfoglia: Department of Computer Science and Engineering – DISI, University of Bologna
Filippo Nardini: Department of Industrial Engineering – DIN, University of Bologna
Pericle Randi: Unità operativa di medicina fisica e riabilitazione, INAIL Centro Protesi
Angelo Davalli: Area ricerca e formazione, INAIL Centro Protesi
Antonella Carbonaro: Department of Computer Science and Engineering – DISI, University of Bologna
Lorenzo Chiari: Department of Electrical, Electronic and Information Engineering “Guglielmo Marconi” – DEI, University of Bologna
Sabato Mellone: Department of Electrical, Electronic and Information Engineering “Guglielmo Marconi” – DEI, University of Bologna

DOI: https://doi.org/10.1038/s41597-024-03593-6
Journal volume & issue: Vol. 11, no. 1
pp. 1 – 14

Abstract

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Abstract Lower limb amputation is a medical intervention which causes motor disability and may compromise quality of life. Several factors determine patients’ health outcomes, including an appropriate prosthetic provision and an effective rehabilitation program, necessitating a thorough quantitative observation through different data sources. In this context, the role of interoperability becomes essential, facilitating the reuse of real-world data through the provision of structured and easily accessible databases. This study introduces a comprehensive 10-year dataset encompassing clinical features, mobility measurements, and prosthetic knees of 1006 trans-femoral amputees during 1962 hospital stays for rehabilitation. The dataset is made available in both comma-separated values (CSV) format and HL7 Fast Healthcare Interoperability Resources (FHIR)-based representation, ensuring broad utility and compatibility for researchers and healthcare practitioners. This initiative contributes to advancing community understanding of post-amputation rehabilitation and underscores the significance of interoperability in promoting seamless data sharing for meaningful insights into healthcare outcomes.

Published in Scientific Data

ISSN: 2052-4463 (Online)
Publisher: Nature Portfolio
Country of publisher: United Kingdom
LCC subjects: Science
Website: https://www.nature.com/sdata/

About the journal