Journal of Patient Experience (Dec 2021)

Benefits and Drawbacks of Continuous Glucose Monitoring (CGM) Use in Young Children With Type 1 Diabetes: A Qualitative Study From a Country Where the CGM Is Not Reimbursed

  • Kağan Ege Karakuş,
  • Sibel Sakarya MD, MPH,
  • Gül Yeşiltepe Mutlu MD,
  • Metehan Berkkan,
  • Serra Muradoğlu MA,
  • Ecem Can MSN, RN,
  • Tuğba Gökçe BSN,
  • Elif Eviz MD,
  • Şükrü Hatun MD

DOI
https://doi.org/10.1177/23743735211056523
Journal volume & issue
Vol. 8

Abstract

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Investigating the daily life experiences of patients using Continuous Glucose Monitoring (CGM) can highlight the benefits and barriers in using this system for people with type 1 diabetes (T1D). Semi-structured qualitative interviews were conducted with the caregivers of 10 children aged 6 months. These interviews were analyzed using the content analysis approach and from these interviews, four meta themes emerged: metabolic control, barriers to CGM use, CGM use in daily life, and comparison with fingersticks. Families reported the following as benefits of CGM: pain relief, better hypoglycemia and hyperglycemia management, increased control over diet and social life, reduced worries at school and during the night, and convenience in entrusting the child to the care of others. Cost, concerns related to accuracy and reliability of measurements, insertion, adhesion and removal issues all emerged as barriers to CGM use. The most prominent issue was the economic burden of CGM. Families accept this burden, even though it is challenging, as their experiences in using CGM are positive and they feel that CGM is necessary for T1D management.