Allergic and hypersensitivity condition in the International Patients’ Summary (IPS) standard: The need of updates through the International Classification of Diseases (ICD)-11

Luciana Kase Tanno, MD, PhD; Alain Perie, PhD; Jonathan A. Bernstein, MD; James L. Sublett, MD; Karapet Davtyan, MD, MPH, MBA; Frederic Berard, MD, PhD; Ruby Pawankar, MD, PhD; Marylin Valentin Rostan, MD; Herberto Chong, MD, PhD; Anahi Yañez, MD; Ignacio J. Ansontegui, MD, PhD; Motohiro Ebisawa, MD, PhD; Gary W.K. Wong, MD, PhD; Mario Morais-Almeida, MD; Bryan Martin, MD; Yann Briand, PhD; Pascal Demoly, MD, PhD

World Allergy Organization Journal (Aug 2024)

Allergic and hypersensitivity condition in the International Patients’ Summary (IPS) standard: The need of updates through the International Classification of Diseases (ICD)-11

Luciana Kase Tanno, MD, PhD,
Alain Perie, PhD,
Jonathan A. Bernstein, MD,
James L. Sublett, MD,
Karapet Davtyan, MD, MPH, MBA,
Frederic Berard, MD, PhD,
Ruby Pawankar, MD, PhD,
Marylin Valentin Rostan, MD,
Herberto Chong, MD, PhD,
Anahi Yañez, MD,
Ignacio J. Ansontegui, MD, PhD,
Motohiro Ebisawa, MD, PhD,
Gary W.K. Wong, MD, PhD,
Mario Morais-Almeida, MD,
Bryan Martin, MD,
Yann Briand, PhD,
Pascal Demoly, MD, PhD

Affiliations

Luciana Kase Tanno, MD, PhD: Division of Allergy, Department of Respiratory Medicine & Allergy, University Hospital of Montpellier, Montpellier, France; Desbrest Institute of Epidemiology and Public Health, UMR UA11 University of Montpellier - INSERM, France; WHO Collaborating Centre on Scientific Classification Support, Montpellier, France; Corresponding author. Division of Allergy, Department of Respiratory Medicine & Allergy, Hôpital Arnaud de Villeneuve, University Hospital of Montpellier, 371, av. du Doyen Gaston Giraud - 34295, Montpellier cedex 5, France.
Alain Perie, PhD: Agence Numerique de Santé, Paris, France
Jonathan A. Bernstein, MD: University of Cincinnati College of Medicine, Department of Internal Medicine, Division of Rheumatology, Allergy and Immunology, Ohio, USA
James L. Sublett, MD: Managing Partner, Family Allergy & Asthma; Clinical Professor, Section of Allergy & Immunology, Department of Pediatrics, University of Louisville School of Medicine, Louisville, KY, USA
Karapet Davtyan, MD, MPH, MBA: Data and Digital Health Unit of the Division of Country Health Policies and Systems of the WHO Regional Office for Europe, USA
Frederic Berard, MD, PhD: Department of Allergy and Clinical Immunology, University Hospital of Lyon Sud, Lyon, France
Ruby Pawankar, MD, PhD: Department of Pediatrics, Nippon Medical School, Tokyo, Japan
Marylin Valentin Rostan, MD: Hospital Pereira Rossell, División de Alergia Pediátrica y Medicina Respiratoria, Montevideo, Uruguay
Herberto Chong, MD, PhD: Department of Pediatrics at the Federal University of Paraná, Paraná, Brazil
Anahi Yañez, MD: Research Institute in Allergy and Respiratory Diseases, Buenos Aires, Argentina
Ignacio J. Ansontegui, MD, PhD: Department of Allergy and Immunology, Hospital Quirónsalud Bizkaia Erandio, Bilbao, Spain
Motohiro Ebisawa, MD, PhD: Clinical Research Center for Allergy and Rheumatology, Sagamihara National Hospital, Japan
Gary W.K. Wong, MD, PhD: Department of Paediatrics, Faculty of Medicine, The Chinese University of Hong Kong, Hong Kong, China
Mario Morais-Almeida, MD: Allergy Center, CUF Descobertas Hospital, Lisbon, Portugal
Bryan Martin, MD: Medicine and Pediatrics, The Ohio State University in Columbus, Ohio, USA
Yann Briand, PhD: Agence Numerique de Santé, Paris, France; French WHO Collaborating Centre, Paris, France
Pascal Demoly, MD, PhD: Division of Allergy, Department of Respiratory Medicine & Allergy, University Hospital of Montpellier, Montpellier, France; Desbrest Institute of Epidemiology and Public Health, UMR UA11 University of Montpellier - INSERM, France; WHO Collaborating Centre on Scientific Classification Support, Montpellier, France

Journal volume & issue: Vol. 17, no. 8
p. 100921

Abstract

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In 2010, the United States Human and Health Services (US HHS) and the European Union's (EU) Directorate General for Communications Networks, Content and Technology signed a memorandum of understanding to stimulate cooperation surrounding health-related information communications technology. The key project that emerged from this agreement is the International Patient Summary (IPS), intended to provide succinct clinically relevant patient summaries, which are generalizable and condition-independent, that can be readily used by all clinicians for the care of patients. Although allergies are included in the main information required by the IPS library and framework, it is misrepresented which leads to underdiagnosis or misdiagnosis of patients suffering from allergic and hypersensitivity conditions (A/H). The French and Montpellier World Health Organization (WHO) Collaborating Centres have provided arguments for supporting representation of A/H in the IPS. These are based on the relevance of the new classification of A/H in the WHO International Classification of Diseases 11th version (ICD-11), and the need for alignment of eHealth tools with harmonized health information. We first present the A/H in the IPS initiative with the mission of producing an international information system that can be used globally in electronic health records to standardize clinical diagnoses and facilitate communication between clinicians caring for patients with A/H diseases. It is believed this initiative will provide a strong voice for the allergy community and an effective process for improving the quality of health data that will optimize medical care for our patients worldwide.

Published in World Allergy Organization Journal

ISSN: 1939-4551 (Online)
Publisher: Elsevier
Country of publisher: Netherlands
LCC subjects: Medicine: Internal medicine: Specialties of internal medicine: Immunologic diseases. Allergy
Website: https://www.sciencedirect.com/journal/world-allergy-organization-journal

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