Neuropsychiatric Disease and Treatment (Apr 2022)
Psychometric Evaluation of the Polish Version of the Caregiver Priorities and Child Health Index of Life with Disabilities (CPCHILD)
Abstract
Paulina Nowak,1 Unni Narayanan,2 Małgorzata Szmurło,3 Anna Krzyżańska,1 Maciej Głowacki,1 Ewa Misterska,4 Marek Jóźwiak1 1Pediatric Orthopedics and Traumatology Department, K. Marcinkowski Medical University W. Dega Orthopedics and Rehabilitation Hospital, Poznan, Poland; 2Division of Orthopaedic Surgery Department, The Hospital for Sick Children, University of Toronto, Toronto, Canada; 3Rehabilitation Department, St Ludwik’s Hospital, Krakow, Poland; 4Department of Pedagogy and Psychology, University of Security, Poznan, PolandCorrespondence: Paulina Nowak, Orthopedics and Traumatology Department, K. Marcinkowski Medical University W. Dega Orthopedics and Rehabilitation Hospital, Poznan, Poland, Tel +48 697467704, Email [email protected]: The assessment of the quality of life is an important element of the clinical examination of the patient. The aim of this study was translation and cross-cultural adaptation of the “Caregiver Priorities and Child Health Index of Life with Disabilities” (CPCHILD) questionnaire into Polish language, and testing of reliability and validity of the CPCHILD-PL for children with cerebral palsy (CP).Material and Methods: A Polish version of CPCHILD was created according to internationally accepted guidelines. Parents (n=77) of 51 boys/26 girls between 3 and 17 years with CP with Gross Motor Function Classification System I–V (GMFCS I–V) participated. To assess the reliability each domain and the total measure was tested for internal consistency and test-retest reliability. Convergent validity was evaluated by correlating the CPCHILD-PL with the CHAQ (Childhood Health Assessment Questionnaire) questionnaire.Results: Test-retest reliability assessed by Spearman correlation coefficient for the final result of CPCHILD-PL and for most of domains were above 0.90. The values of Cronbach’s-α coefficient (measuring internal consistency) were high for all domains (except for domain 5: Health) and the entire CPCHILD-PL, with the range 0.88– 0.96. The comparison between CPCHILD-PL and the Disability Index (DI) of the CHAQ showed a negative correlation. The higher the DI, the lower the CPCHILD result. The Spearman’s rank coefficient was − 0.75.Conclusion: The Polish version for the CPCHILD for children with CP seems to be reliable and valid tool for assessing health-related quality of life from the caregiver perspective. It can be used in research and clinical practice for evaluation and comparison of health-related quality of life in children with CP in different countries.Keywords: cerebral palsy, health-related quality of life, CPCHILD, validity, reliability
