Frontiers in Psychology (Nov 2021)
Patient and Public Involvement in Youth Mental Health Research: Protocol for a Systematic Review of Practices and Impact
- Célia M. D. Sales,
- Célia M. D. Sales,
- Filipa Martins,
- Marisa M. Alves,
- Sara Carletto,
- Sonia Conejo-Cerón,
- Luis Costa da Silva,
- Luis Costa da Silva,
- Anja Čuš,
- Chloe Edridge,
- Chloe Edridge,
- Nuno Ferreira,
- Camellia Hancheva,
- Esperanca M. A. Lima,
- Shaun Liverpool,
- Shaun Liverpool,
- Nick Midgley,
- Bettina Moltrecht,
- Patricia Moreno-Peral,
- Nicholas Morgan,
- Rose Mortimer,
- Catarina Pinheiro Mota,
- Catarina Pinheiro Mota,
- Giada Pietrabissa,
- Giada Pietrabissa,
- Sonia Sousa,
- Randi Ulberg,
- Randi Ulberg,
- Julian Edbrooke-Childs,
- Julian Edbrooke-Childs
Affiliations
- Célia M. D. Sales
- Faculty of Psychology and Education Science, University of Porto, Porto, Portugal
- Célia M. D. Sales
- Center for Psychology, University of Porto (CPUP), Porto, Portugal
- Filipa Martins
- Faculty of Psychology and Education Science, University of Porto, Porto, Portugal
- Marisa M. Alves
- Faculty of Psychology and Education Science, University of Porto, Porto, Portugal
- Sara Carletto
- Department of Neuroscience “Rita Levi Montalcini”, University of Torino, Turin, Italy
- Sonia Conejo-Cerón
- Biomedical Research Institute of Malaga (IBIMA), Málaga, Spain
- Luis Costa da Silva
- Evidence Based Practice Unit, University College London and Anna Freud National Centre for Children and Families, Clinical, Educational and Health Psychology, London, United Kingdom
- Luis Costa da Silva
- Child Outcomes Research Consortium, Anna Freud National Centre for Children and Families, London, United Kingdom
- Anja Čuš
- Department of Child and Adolescent Psychiatry, Medical University of Vienna, Vienna, Austria
- Chloe Edridge
- Evidence Based Practice Unit, University College London and Anna Freud National Centre for Children and Families, Clinical, Educational and Health Psychology, London, United Kingdom
- Chloe Edridge
- Child Outcomes Research Consortium, Anna Freud National Centre for Children and Families, London, United Kingdom
- Nuno Ferreira
- Department of Social Sciences, University of Nicosia, Nicosia, Cyprus
- Camellia Hancheva
- Sofia University St. Kliment Ohridski, Sofia, Bulgaria
- Esperanca M. A. Lima
- Faculty of Psychology and Education Science, University of Porto, Porto, Portugal
- Shaun Liverpool
- Evidence Based Practice Unit, University College London and Anna Freud National Centre for Children and Families, Clinical, Educational and Health Psychology, London, United Kingdom
- Shaun Liverpool
- 0Faculty of Health, Social Care and Medicine, Edge Hill University, Ormskirk, United Kingdom
- Nick Midgley
- Evidence Based Practice Unit, University College London and Anna Freud National Centre for Children and Families, Clinical, Educational and Health Psychology, London, United Kingdom
- Bettina Moltrecht
- Evidence Based Practice Unit, University College London and Anna Freud National Centre for Children and Families, Clinical, Educational and Health Psychology, London, United Kingdom
- Patricia Moreno-Peral
- Biomedical Research Institute of Malaga (IBIMA), Málaga, Spain
- Nicholas Morgan
- Child Outcomes Research Consortium, Anna Freud National Centre for Children and Families, London, United Kingdom
- Rose Mortimer
- Evidence Based Practice Unit, University College London and Anna Freud National Centre for Children and Families, Clinical, Educational and Health Psychology, London, United Kingdom
- Catarina Pinheiro Mota
- Evidence Based Practice Unit, University College London and Anna Freud National Centre for Children and Families, Clinical, Educational and Health Psychology, London, United Kingdom
- Catarina Pinheiro Mota
- 1University of Trás-os-Montes and Alto Douro, Vila Real, Portugal
- Giada Pietrabissa
- 2Department of Psychology, Catholic University of Milan, Milan, Italy
- Giada Pietrabissa
- 3Istituto Auxologico Italiano IRCCS, Psychology Research Laboratory, Milan, Italy
- Sonia Sousa
- 4School of Digital Technologies, Tallinn University, Tallinn, Estonia
- Randi Ulberg
- 5Division of Mental Health and Addiction, Institute of Clinical Medicine, University of Oslo, Oslo, Norway
- Randi Ulberg
- 6Department of Psychiatry at Diakonhjemmet Hospital, Oslo, Norway
- Julian Edbrooke-Childs
- Evidence Based Practice Unit, University College London and Anna Freud National Centre for Children and Families, Clinical, Educational and Health Psychology, London, United Kingdom
- Julian Edbrooke-Childs
- Child Outcomes Research Consortium, Anna Freud National Centre for Children and Families, London, United Kingdom
- DOI
- https://doi.org/10.3389/fpsyg.2021.703624
- Journal volume & issue
-
Vol. 12
Abstract
Various health settings have advocated for involving patients and members of the public (PPI) in research as a means to increase quality and relevance of the produced knowledge. However, youth PPI has been an understudied area. This protocol paper describes a new project that aims to summarize what is known about PPI with young people in mental health research. In line with the Preferred Reporting Items for Systematic reviews and Meta-Analyses Statement guidelines we will identify and appraise suitable articles and extract and synthesize relevant information including at least two reviewers at each stage of the process. Results will be presented in two systematic reviews that will describe (a) how youth PPI has been conducted (Review1) and (b) what impact youth PPI had on the subsequent research and on stakeholders (Review2). To our knowledge, this is the first set of reviews that uses a critical appraisal tool, which is co-developed with children and young people. Findings from this project will provide valuable insights and set out the key steps to adopting adequate PPI methods when involving children and young people in mental health research.
Keywords
