Participation Assessment Scales for 4 to 18-Year-Old Individuals With Cerebral Palsy: A Systematic Review

Abstract

Objectives: Participation is defined as involvement in life situations and the ultimate outcome for individuals with disabilities. One of the most common causes of chronic disabilities that restrict individuals’ participation is cerebral palsy (CP). The main goal of rehabilitation is to empower clients’ participation in various life areas. To affect participation, assessing the outcomes in individuals with different health conditions is necessary. Accordingly, this study aims to overview the psychometric properties of participation assessment scales for 4 to 18-year-old individuals with CP. Methods: A systematic review using PRISMA guidelines was completed. The searched keywords included the following items: participation, cerebral palsy, ADL, IADL, education, play, leisure, social participation, rest/sleep, work, leisure, scale, assessment tools, activity, meaningful activity, purposeful activity, function, performance, creational activity, physical activity participation, recreational activity, self-care, mobility, and functional mobility. The inclusion criterion for articles was being published in a peer review journal from 2000 to 2020. Results: After examining the title, abstract, and full text, 22 articles were eligible to be included. Among 1482 studies, a total of 22 studies assessing the participation of children with CP in meaningful activities were included in this review. Discussion: The psychometric properties of 8 outcome measures for 4 to 18-year-old individuals with CP were available and 5 assessment scales have the potential to be used for this population; however, the psychometric properties of these scales were unavailable.

Keywords

• cerebral palsy
• participation
• assessment
• children