Organizing Patient Panel: Suggestions on Incorporating Patient's Values and Preferences into Guideline Development

Abstract

As an emerging international research hotspot, the development of guidelines with patient participation has seen great differences in related methodological research in China and abroad. This paper advocates the establishment of patient panel, and discusses the working methods of patient panel, the source and selection of patient representatives, participation phases, management, and support. Methodological optimization suggestions are also proposed, such as the sustainability of patients, structuring and two-way communication mode made by a consensus expert group involving patients' values and preferences, in order to provide a reference for the development of patient participation guidelines in China.

Keywords

• patient participation
• patient panel
• values and preferences
• clinical practice guideline