Stage 1 development of a patient-reported experience measure (PREM) for chronic obstructive pulmonary disease (COPD)

Abstract

Chronic lung disease: Giving importance to patients’ emotions An exploration of patient perceptions of living with chronic lung disease will help develop a new patient reported experience scale. Healthcare services are aiming to provide effective patient-centered care for those with chronic obstructive pulmonary disease (COPD). Such care strategies require structured, validated patient feedback scales to facilitate accurate communication between patients, carers and healthcare professionals. Susan Walker at Anglia Ruskin University in Chelmsford, UK, and co-workers analyzed qualitative data from interviews with 64 COPD patients in London and Essex regarding their emotions and perceptions of living with COPD, with the aim of creating a patient reported experience measure, or PREM. Initial results identified five themes—including ‘journey to diagnosis’ and ‘everyday life’—and twenty-one affective responses, ranging from negative to positive. The team will take these results forward for further validation.