Revista de Enfermagem da Universidade Federal de Santa Maria (Sep 2020)

Management of care for children/adolescents with chronic diseases: (dis)articulation of the network and fragmentation of the actions

  • Bruna Gabrielle de Araújo Silva,
  • Amanda Narciso Machado,
  • Vanessa Medeiros da Nóbrega,
  • Renata Cardoso Oliveira,
  • Elenice Maria Cecchetti Vaz,
  • Neusa Collet

DOI
https://doi.org/10.5902/2179769242529
Journal volume & issue
Vol. 10, no. 0
pp. e76 – e76

Abstract

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Objective: to analyze the management of care for children/adolescents with chronic diseases in the health care network, based on the experiences of families in the search for the care of their child. Method: a qualitative research, carried out with ten relatives of children/adolescents with chronic diseases, residents of the city of João Pessoa, Paraiba, Brazil. Data was collected from November 2017 to June 2018 through semi-structured interviews and submitted to inductive thematic analysis. Results: the health care network for children/adolescents with chronic diseases is disjointed and the care actions fragmented; families design their own therapeutic itineraries and do not receive support from e professionals/services in care management. Conclusion: disarticulation in the planning of care actions in health care networks, combined with punctual and discontinuous care for children/adolescents with chronic diseases and their family weaken and impoverish care management.

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