P129: NARRATING SICKLE CELL DISEASE: THE EXPERIENCES OF PATIENTS AND CARGIVERS

• L De Franceschi,
• C Galvani,
• G Ruffo,
• R Colombatti,
• G Graziadei,
• G Palazzi,
• D Venturelli,
• G Forni,
• A Quota,
• A Scopinaro,
• R Vindigni,
• M Zini,
• P Chesi,
• L Reale

Affiliations

L De Franceschi

1 Department of Medicine, Section of Internal Medicine, University of Verona, Policlinico GB Rossi, AOUI, Verona, ITALY

C Galvani

1 Department of Medicine, Section of Internal Medicine, University of Verona, Policlinico GB Rossi, AOUI, Verona, ITALY

G Ruffo

2 U.O. Ematologia con Talassemia ARNAS Civico Di Cristina Benfratelli, Palermo, ITALY

R Colombatti

3 Clinic of Pediatric Hematology Oncology, Department of Child and Maternal Health, Azienda Ospedaliera - University of Padova, Padova, ITALY

G Graziadei

4 Department of Internal Medicine, Rare Disease Center, Fondazione IRCCS Ca’ Granda Ospedale Maggiore Policlinico, Milano, ITALY

G Palazzi

5 Dipartimento Integrato Materno Infantile U. O. Complessa di Pediatria Università degli Studi di Modena e Reggio Emilia, Modena, ITALY

D Venturelli

6 Transfusion Medicine Department University Hospital Modena, Modena, ITALY

G Forni

7 Centro della Microcitemia e Anemie Congenite e del Dismetabolismo del Ferro, Ospedale Galliera, Genova, ITALY

A Quota

8 U.O.S talassemia PO Vittorio Emanuele, Gela, ITALY

A Scopinaro

9 UNIAMO Federazione Italiana Malattie Rare APS ETS, Roma, ITALY

R Vindigni

10 UNITED – Federazione Nazionale delle Associazioni Talassemia, Drepanocitosi e Anemia Rare, Ferrara, ITALY

M Zini

11 Novartis Pharma, Origgio, ITALY

P Chesi

12 Istud, healthcare area, Milano, ITALY

L Reale

12 Istud, healthcare area, Milano, ITALY