A phenomenological exploration of the occupational identity of late-diagnosed autistic women in the United Kingdom

Abstract

Abstract Many autistic women without an intellectual disability receive their diagnoses later in life. Little is understood about how gender, autism, and a late diagnosis intersect to impact the occupational identity of these individuals. Purpose: the current study aimed to explore how autistic women who received a diagnosis in adulthood describe key areas that influence the development of occupational identity. Methods: eight participants recruited from social media were interviewed through semi-structured interviews, and a reflexive thematic analysis was conducted on the rich accounts of their lived experiences. Results: three major overlapping themes included experiencing disconnection from one’s own volition, striving for occupational balance, and acceptance as a protective factor within these women's lives. Subthemes were in relation to personal reconciliation around difference and the dynamic between the person, environment, and the dominant socio-cultural context. The political, social, and economic landscape perpetuating neoliberal, individualistic and ableist ideals within practice is criticised considering the lived experiences presented in the findings. Conclusion: the necessity for collective health promotion through improving the basic standard of living according to the social determinants of health is highlighted.

Keywords

• Autism
• Late-diagnosis
• Women
• Occupational identity
• Society