Obstacles to an Effective Transition to Adult Services for Patients with Hirschsprung Disease

Abstract

A growing number of patients with Hirschsprung disease are reaching adulthood, of whom a significant minority will require ongoing input from healthcare providers. In order to ensure patients receive the best care possible, it is essential to transition patients appropriately to adult services. This article describes the unmet need and some of the obstacles to this process and explores potential solutions, drawing on model examples for transitional care.

Keywords

• Hirschsprung disease
• HSCR
• long-term outcomes
• transitional care