Long COVID and episodic disability: advancing the conceptualisation, measurement and knowledge of episodic disability among people living with Long COVID – protocol for a mixed-methods study

• Richard Harding,
• Kristine M Erlandson,
• Jaime H Vera,
• Colm Bergin,
• Ciaran Bannan,
• Darren A Brown,
• Margaret O'Hara,
• Kelly K O'Brien,
• Patricia Solomon,
• Angela M Cheung,
• Lisa Avery,
• Soo Chan Carusone,
• Susie Goulding,
• Lisa McCorkell,
• Larry Robinson,
• Catherine Thomson,
• Hannah Wei,
• Natalie St Clair-Sullivan,
• Brittany Torres,
• Niamh Roche,
• Ruth Stokes,
• Patriic Gayle

Affiliations

Richard Harding

Cicely Saunders Institute for Palliative Care, Policy and Rehabilitation, King`s College London, London, UK

Kristine M Erlandson

1 School of Medicine, University of Colorado, Aurora, Colorado, USA

Jaime H Vera

3 Senior Lecturer in HIV Medicine and Consultant Physician, Brighton and Sussex University Hospitals Trust, Brighton, UK

Colm Bergin

School of Medicine, Trinity College Dublin, Dublin, Ireland

Ciaran Bannan

1 Department of Genito-Urinary Medicine and Infectious Diseases, St. James`s Hospital, Dublin, Ireland

Darren A Brown

Therapies Department, Chelsea and Westminster Hospital NHS Foundation Trust, London, UK

Margaret O'Hara

Long Covid Support, Birmingham, UK

Kelly K O'Brien

1Department of Physical Therapy, University of Toronto, Toronto, Ontario, Canada

Patricia Solomon

1 School of Rehabilitation Science, McMaster University, Hamilton, Ontario, Canada

Angela M Cheung

University of Toronto,
 Toronto, Ontario, Canada

Lisa Avery

Department of Biostatistics, Princess Margaret Cancer Center, Toronto, Ontario, Canada

Soo Chan Carusone

McMaster Collaborative for Health and Aging, McMaster University, Hamilton, Ontario, Canada

Susie Goulding

COVID Long-Haulers Support Group Canada, Toronto, Ontario, Canada

Lisa McCorkell

Patient-Led Research Collaborative, Washington, DC, USA

Larry Robinson

Sunnybrook Health Sciences Centre, Sunnybrook Research Institute, Toronto, Ontario, Canada

Catherine Thomson

Long COVID Physio, London, UK

Hannah Wei

Patient-Led Research Collaborative, Ottawa, Ontario, Canada

Natalie St Clair-Sullivan

Royal Sussex County Hospital, Brighton and Sussex University Hospitals NHS Foundation Trust, Brighton, UK

Brittany Torres

Department of Physical Therapy, Temerty Faculty of Medicine, University of Toronto, Toronto, Ontario, Canada

Niamh Roche

Long COVID Ireland, Dublin, Ireland

Ruth Stokes

Long COVID Ireland, Dublin, Ireland

Patriic Gayle

Canada-International HIV and Rehabilitation Research Collaborative (CIHRRC), London, UK